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Saturday, August 16, 2008

Some more AVM News...

Young motorcyclist holds her line with a caring heart

Photos here... (Full story too...)

Haley Rogers, a 15-year-old Diamond Bar resident, is relatively new to the sport of motocross.

With only 20 races under her boots in a male-dominated Moto X Kidz race series she has finally captured her first win on her #124 Suzuki 125cc in the 250cc starter class at Lake Elsinore MX Park.

So, what’s the big deal, you ask? Young women racing MX have been on the starting gate with young men since the first woman signed up.

Well, what separates Haley from the rest of her field (in this case) is that she wants to dedicate her next race on Sunday, Aug. 17, to a friend of her family: 13-year-old Kassidy Brewer of Murrieta.

Kassidy recently suffered a massive brain aneurysm at the base of her skull identified as arteriovenous malformation (AVM), a very rare and congenital disorder. Kassidy is in a coma being stabilized from severe swelling of the brain at Rady Children’s Hospital in San Diego.

According to a statement made by her family on a Web site, Kassidy was on her way to the emergency room complaining of head pain when she passed out. At the hospital she was diagnosed with a brain aneurysm attributed to the AVM.

Rady Children’s Hospital is the closest facility to the Inland Empire that specializes in pediatric traumas of this nature.

An AVM, as defined by the

National Institute of Neurological Disorders and Stroke, is a defect of the circulatory system described as “snarled tangles of arteries and veins believed to form prior to or soon after birth.”

Haley’s plan

“I would like to do a “pass the boot” fundraiser for Kassidy after my moto with everyone in my race class helping out,” Haley said recently. “I’ll bring extra boots. And, I’d like this race to have the first all-women’s moto class in this series. I need four more women to sign up with me to have that.”

The Diamond Bar-Murrieta connection

“My brother, sister, mom and step-dad all live in Temecula and I’m a member of a sober Christian-based motorcycle club, the Last Disciples,” said Haley’s dad, Dave Rogers. “Kassidy’s father, Kevin Brewer, is a very active and honored member of our club and the community.

“[The Last Disciples] come from a variety of backgrounds and have experienced the hard realities of life and death in the real world. We no longer live just for ourselves. We are now with Jesus.

“Our club is our ministry, a way of life, serving the Lord through loving and serving our communities and those in need of help.

“The Brewers are such an awesome family. As a matter of fact, the entire family is well known for being called the Brew Crew. They’ve helped Haley many times with MX gear and safety equipment, since they co-own two Vespa dealerships in San Diego County, and their oldest daughter, Danielle Brewer, runs one of them.”

For more information on the Last Disciples, visit www.lastdisciples.org.

The Brew Crew

“Kassidy is quite a little girl,” Kevin Brewer shared with me during a telephone interview. “She has her black belt in Tae Kwon Do and she works and teaches martial arts at Robles Studio in Temecula. She even does light bookkeeping at 13 years of age. That’s quite impressive, if I do say so myself.”

Brewer then became apologetic. “You’ll have to forgive me if I seem to be choking up, ’cause I am. Kassidy was getting ready to try out for her second-degree black belt. She is very, very virtuous and mature for her age. She has always worked well with me on being disciplined.”

The Brewers run a commercial printing business based in the San Gabriel Valley.

“Some of our customers are Pechanga Hotel & Casino, the X Games, and we’re a title sponsor of the Temecula Balloon and Wine Festival,” said Brewer. “The round trip between my daughter and work is well over 200 miles. It’s very hard to sit that long between work and being at her side.

“My eldest daughter, Danielle, worked for the Metal Mulisha for a period of three years and we still regularly attend church with some of the guys at Revival Christian Fellowship in Menifee. Our family are huge fans of supercross and freestyle. We still get out and ride.”

Middle daughter Lexi Brewer, 17, is starting school a week late so she can be near her sister.

The motorcycle roots run deep

“I used to manage large events for California Speedway,” Brewer said. “If you need any help with events like the Lake Elsinore Grand Prix, I know all the tricks of the trade. No problem; I’ll help. I’ve raced that race.

“I used to race motocross. As a matter of fact, I won my division at Mammoth in 1990. I think it’s wonderful that Haley wants to help Kassidy at her race series. She gets it.”

Haley’s moto heart

“The heroes who influence my motos and active lifestyle are Ricky Carmichael and Ashley Fiolek,” Haley said. “I read Ashley’s monthly column all the time in Transworld magazine. I like to follow her profile and model.

“It would be so cool if the local race women could come out Sunday and help me with this fundraiser and race with me. That would be awesome for sure.”

Commenting on his daughter, Dave Rogers finished, “Haley is our youngest daughter of four. Riding dirt bikes really stuck with her. She says to me all the time, ‘Dad, I want to go riding – now.’

It’s a lot of work hauling her around to all the MX parks in the Inland Empire. I say to her, ‘Now?’ But when she sticks her lower lip out and begs, I give in. I’m a man. What am I supposed to do? Lovingly, she’s our little family brat. I used to race at Ascot, so I get it too.”

To visit Kassidy Brewer’s family outreach site, visit www.caringbridge.org/visit/kassidybrewer.



I recommend this for you who wish to know how it feels.

What have I been up to? Mostly working on the few web sites I have... so really I can say "Not much."

Whatta say... we youtube you all.... YES?

Mental As Anything - Rock 'n' Roll Music


Funny! Are You Ready For Freddy music video by the Fat Boys.

Thats enough... okay.

Friday, August 15, 2008

A little AVM news!

I got this..
Hope you enjoy...


By Renee Worthing

Staff Writer

When the community learned about Sanford resident Ricky Arsenault’s struggle with a painful birthmark, called an arterio-venous malformation (AVM) and his desire to have surgery to remove it, they rallied behind him, raising about $40,000 with a pancake breakfast, a dance and a raffle.

The first surgery to remove the AVM is scheduled for Aug. 28 and includes an angiogram and emobilization, a process in which blockages are placed in the arteries to restrict and redirect the flow of blood to the site.

Arsenault hopes it will relieve him of the pain that has been part of his life for so long, but he said his energy level is low and he wonders how quickly he will heal following the surgery. He said the birthmark is bleeding “a lot,” leaving him “feeling like a zombie.”

He said he wants to prepare for the upcoming surgery by readying his body with a bowel cleansing followed by a nourishing product called MaxGXL.

“I would like some honest input from the group. I have been pondering what I can do to prepare for my upcoming surgeries that will start later this month. In the past year, I have lost over 30 pounds. My thoughts are that I will recover more quickly if my physical body is in better shape. I would like to do some cleansing and nourishing, but due to the slow economic conditions, my construction company has not been very profitable. How do you all feel about my using some of the AVM fund for this purpose? Please let me know ASAP if you have an opinion,” he asked in an email to the group, dated Aug. 1

Arsenault is self-employed and must carry his own health insurance for $600 a month in addition to a yearly $5,000 deductible, but because his insurance does not cover the bowel cleansing or supplement, he hopes to use some of the funds raised on his behalf, but said he does not want to misuse the money.

“I just think if my energy level was up, I’d recover quicker,” Arsenault said.

Arsenault said he has always been interested in nutrition, particularly when he was younger.

“Food at the supermarket these days just doesn’t provide the nutrients you need,” he said. “Supplementation is almost a necessity.”

He said in order to supplement his diet with a nutritional product, he would like to cleanse his bowels first to allow the nutrients to absorb into his system.

“The whole idea is to cleanse and then nourish,” he said.

He said the nutritional supplement would probably cost about $30 a month, but he said he hasn’t delved that far into the program yet.

He said he used bowel-cleansing products for the first time about 12 years ago at a cost of about $100 total.

At the beginning of August, Arsenault sent a letter to the small group of people who organized the fund raising events, seeking permission to use some of the surgery money for the supplement.

Debbie Beal, a representative of TDBanknorth in Sanford where an account was set up for Arsenault, said there are no restrictions on how the funds could be used.

As of press time, Arsenault has not received any response.

---
Thought you mite enjoy this.

Damn...

So other that nothing I ain't doing a thing. I really want a nap... Lets do a little youtube... yes.



1960's music...and How It Impacted Society
Nice... eh?
one more...


Major Tom (Coming Home)

gotta go...
Have a great one....



Thursday, August 14, 2008

Oh boy...

No AVM news today.
I have a bugg, in my computer... I hope I can get it out.

My wife and I are kinda fighting...The funny thing is I don't know why. Oh well...

I want to pass this on to you...

I think it is cool.

Good bye...

Wednesday, August 13, 2008

hey guys...

How you doing...
me?

actually today i feel pretty good.
can spell worth a banana... but hey what da ya want.

feel like a little youtube...

I Do.

I was only 19...


Naked Eyes - "Promises Promises"

and...

Madonna - Physical Attraction

I just love the 80's...
can't tell... can ya.

I have been suffering the ol' Duke Lacrosse vibe. I may start putting some up... but it will not be in blog.
I'll let you know.
You tell me if you want it.

by the way... good bye.

AVM post....

Thank you for taking the time to stop by Andrea's PrayerSpot. We hope you are blessed and encouraged!
____________

Dear Family and Friends,

Thank you for your constant and specific prayers. We have some more information after the angiogram yesterday at UCLA. First, the angiogram went well with no complications and Andrea's stay in pre and post operative was really great (thanks to Lee McAllister :))!!.

We are blessed that the AVM is still relatively shallow and "most" of the vessels terminate within the AVM. Dr. Gonzalez reported that he feels the vessels are strong and don't pose a high risk for a bleed. We are also blessed that Andrea has some treatment options before her.

So far, it doesn't look like Andrea will be a candidate to have the AVM surgically removed. There is one artery that carries blood to the portion of Andrea's brain that controls her vision. Dr. Gonzalez has preliminarily suggested that we do not operate but rather do a combination of interventions through embolization and radiation.

Embolization is the process by which the doctors put a type of "sticky glue" into some/most of the vessels within the AVM. They do this through a catheter and not open brain surgery. The radiation is also a specialized treatment, but the results and knowledge if the radiation worked will take approximately 2 years.

We will be meeting with Dr. Gonzalez again this week as well also another vascular neurosurgeon, Dr. Martin (chief of neurosurgery at UCLA), for a consult and 2nd opinion before we proceed with any interventions.

In the meantime, we appreciate your prayers for the following:

1. That we can feel confident and peace in whatever treatment option we decide.

2. Both procedures (embolization and radiation) bring about an element of risk. Please pray now that these procedures will not contribute to any damage in Andrea's mind or body.

3. This is good news for us- but also hard news to have to live with the idea that the malformation might be forever with Andrea, instead of removing it offering a complete cure. Please pray that we as a family, especially Andrea, can give God complete control and find His gift of perfect peace that passes all understanding.

We will keep you posted as intervention procedures are scheduled. Thank you so much for your your phone calls, emails, meals, all of your offerings for help and especially your prayers....

With Love,
Andrea and Jason

Proverbs 3:5-6

P.S. If you would like to contact us, please email jason at jason.petsche@cigna.com or andrea at andreapetsche@gmail.com or andrea@belairpres.org


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