Nothing going on today... I mean nothing!
So I will youtube ya....
More Eminem.....
Okay that's it...
So have a good day... or night... whatever....
buy something...
You know what drives me crazy?
People getting in my face... I don't care who they are... So you get a them... In your face!
Ah well... peace out.
Showing posts with label face. Show all posts
Showing posts with label face. Show all posts
Saturday, November 15, 2008
Saturday, October 04, 2008
An AVM story.
Hi Everyone!
This will definitely be a happier blog than last time! The dark side of the avm has passed for now ... the steroids took effect, and as you can see from the photos, no more puffiness under my left eye! We all went out to celebrate Marks 21st birthday @ Red Lobster on Sunday! Had fun visiting with Mark and we all went to Mom and Vicente house later to play one of our favorite games - Mexican Train! I finally learned how to play and we all enjoyed having some ice cream and just visiting w/each other! We had so much fun - all this helps give me strength, knowing our family bond is so great! Vicente is always so welcoming and supportive!
I've been doing fairly well - avm wise. Had a very minor bleed here and there, and the main thing has been keeping the pain under control! Guess what time it is too? Time for us to head out to CO! We will leave on Monday and return home Thursday in the early afternoon!
We still have some loose ends to wrap up before the trip - looking forward to going and getting this darned avm stabilized some more! I want the wound area to heal already! Speaking of "wounds" - I'm thinking Saba may be having a little procedure of her own! I think she needs to be "fluffed and stuffed" a little bit - her left arm tends to hang a little looser than her right! I will call the Build a Bear place(s) in CO to see who can get her worked on when we arrive on Monday! Saba must be in her best condition - she gets compliments wherever she goes! I couldn't shake this one little girl on Monday while I was @ Wal-mart! She told me how pretty Saba was and then she had to round up her whole family to point Saba out to them! What can I say, Saba takes after me! Ha, ha, ha! Ok, I'm bobble heading over here, so I need to wrap this up!
Thanks to all who come by for a visit - we'll update this on our return from CO!
Mark & Cyndi
P.S. I must also point out that even though these trips are considered "medical", it's sooo nice to get out of Corpus Christi! Mark has been working overtime lately and of course besides his regular day job, he has the full time job of taking care of me! He's an excellent wound care therapist and especially an all around support for me! This past week we lost a dear choir friend, Smitty Leonard. He and his wife Mary Ella served 18 years in choir and Mary Ella plans to continue her choir ministry. While @ the Rosary, the people in the pew in front of us turned to tell Mark what a beautiful voice he has. Mark replied by telling them he served 21 years in choir, but that @ the moment, taking care of his wife is his ministry! Is he a Godsend or what? Couldn't do this whole AVM thing without all of you out there too! Don't ever doubt what a big part all of you play in my AVM Journey!
Sonic Youth - Teen Age Riot
Ziggy Marley - Tomorrow People (1988)
Iron Maiden - The Evil That Men Do (Music Video 1988)
and that about sums it up!
This will definitely be a happier blog than last time! The dark side of the avm has passed for now ... the steroids took effect, and as you can see from the photos, no more puffiness under my left eye! We all went out to celebrate Marks 21st birthday @ Red Lobster on Sunday! Had fun visiting with Mark and we all went to Mom and Vicente house later to play one of our favorite games - Mexican Train! I finally learned how to play and we all enjoyed having some ice cream and just visiting w/each other! We had so much fun - all this helps give me strength, knowing our family bond is so great! Vicente is always so welcoming and supportive!
I've been doing fairly well - avm wise. Had a very minor bleed here and there, and the main thing has been keeping the pain under control! Guess what time it is too? Time for us to head out to CO! We will leave on Monday and return home Thursday in the early afternoon!
We still have some loose ends to wrap up before the trip - looking forward to going and getting this darned avm stabilized some more! I want the wound area to heal already! Speaking of "wounds" - I'm thinking Saba may be having a little procedure of her own! I think she needs to be "fluffed and stuffed" a little bit - her left arm tends to hang a little looser than her right! I will call the Build a Bear place(s) in CO to see who can get her worked on when we arrive on Monday! Saba must be in her best condition - she gets compliments wherever she goes! I couldn't shake this one little girl on Monday while I was @ Wal-mart! She told me how pretty Saba was and then she had to round up her whole family to point Saba out to them! What can I say, Saba takes after me! Ha, ha, ha! Ok, I'm bobble heading over here, so I need to wrap this up!
Thanks to all who come by for a visit - we'll update this on our return from CO!
Mark & Cyndi
P.S. I must also point out that even though these trips are considered "medical", it's sooo nice to get out of Corpus Christi! Mark has been working overtime lately and of course besides his regular day job, he has the full time job of taking care of me! He's an excellent wound care therapist and especially an all around support for me! This past week we lost a dear choir friend, Smitty Leonard. He and his wife Mary Ella served 18 years in choir and Mary Ella plans to continue her choir ministry. While @ the Rosary, the people in the pew in front of us turned to tell Mark what a beautiful voice he has. Mark replied by telling them he served 21 years in choir, but that @ the moment, taking care of his wife is his ministry! Is he a Godsend or what? Couldn't do this whole AVM thing without all of you out there too! Don't ever doubt what a big part all of you play in my AVM Journey!
Sonic Youth - Teen Age Riot
Ziggy Marley - Tomorrow People (1988)
Iron Maiden - The Evil That Men Do (Music Video 1988)
and that about sums it up!
Sunday, August 31, 2008
Camellia girl w/ avm!
Just wanted to post a link to a website for Camellia!
Camellia is a beautiful little girl with a facial AVM. Her story has many similarities to mine as a child. However, it sounds like she is having a rougher time than I did at that age. But luckily, she is already being treated by Dr. Yakes and although this treatment is hard for such a little girl, I hope that it means Camellia will grow up healthy, happy, and AVM free!!!
Camellia's mom keeps an online journal detailing their journey and treatments. Please visit her site and sign her guestbook!!!
http://www.caringbridge.org/visit/camelliaschaner
--------------------------------------
Camellia is a beautiful little girl with a facial AVM. Her story has many similarities to mine as a child. However, it sounds like she is having a rougher time than I did at that age. But luckily, she is already being treated by Dr. Yakes and although this treatment is hard for such a little girl, I hope that it means Camellia will grow up healthy, happy, and AVM free!!!
Camellia's mom keeps an online journal detailing their journey and treatments. Please visit her site and sign her guestbook!!!
http://www.caringbridge.org/visit/camelliaschaner
--------------------------------------
Hello,
Sorry to keep you all hanging. I just spent an hour writing a journal entry and it got lost in space. How frustrating, especially since it took me so many days to get the strength to write again. Anyway, I just couldn't find the words on Tuesday to express what I was feeling. After seeing her and the side effects of the treatment, I became numb. Knowing that we need to do this so many times, made me angry. Accepting that is the only way for a cure, is frightening. Trusting that this is the right path we are on is sometimes hard to do.
As we walked through the airport with all the on-lookers, my fierceness as a mother showed up. I wanted to protect her from the stares. She held my hand and walked tall looking back at each and everyone that looked at her.
Today, I saw my little Camellia shine through for the first time since her surgery. She toe tapped and shimmy-ed her hips the way she does when she is dancing and experiencing joy. Seeing this made me know that she is going to be alright.
I want to thank you all for continuing to support us through this journey. You have seen many parts of me. I am angry at times and hopeful at times. I may lose my faith and then bring it back when I feel stronger. Thank you for hearing me.
Namaste
That's it... a bad day... Post something to her guestbook. PLEASE!!!!
Monday, August 04, 2008
Keith Ravodowitz was born with an AVM on his right cheek.
AVM
by Keith Ravodowitz
My face never stays the same. A constant artist of change, I must hover over it like a parent. It grows and spreads and detours its contours with the precision of a sculpture. It’s beauty is it ugliness and it’s purpose unknown. My hope is that it is necessary, necessary for growth, necessary for life. My hope is that it is the antidote to fear, while also being the reason for it.
Keith Ravodowitz was born with an AVM on his right cheek. He is 32 years old and approaching his 10th surgery.
From...
by Keith Ravodowitz
My face never stays the same. A constant artist of change, I must hover over it like a parent. It grows and spreads and detours its contours with the precision of a sculpture. It’s beauty is it ugliness and it’s purpose unknown. My hope is that it is necessary, necessary for growth, necessary for life. My hope is that it is the antidote to fear, while also being the reason for it.
Keith Ravodowitz was born with an AVM on his right cheek. He is 32 years old and approaching his 10th surgery.
From...
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