I haven't had a nap today...

I know, I know me with no nap? The good news is the world is AVM free...

I gotta go... wife is back...
C-ya'

I had to...

Spongebob sings Just Lose It by Eminem


okay I'm gonna go...

I'm back...

Brain Aneurysm / AVM support in Kansas City

May meeting
It was a beautiful evening last night. There was a warm breeze; the only thing missing were the palm trees and the ocean. It was a small meeting, only five of us there. However, we did accomplish some things! We agreed on our Mission Statement (which you can see on the heading of our blog). It was decided that we will have a picnic in July.......I hope you will come!! We also discussed having someone design a logo for us. It was just nice to sit and talk. I realized something while we were talking. I've thought previously that some of the survivors are completely recovered. Maybe I felt this because Terry is still such a long way from how he used to be. But I think that everyone has some sort of difference since their rupture. Of course, some are more pronounced but I'm sure there are subtle differences. I'm off for now - hopefully we will have more people in June!
from...
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no job...for me...
boo-hoo...

how about some youtube?



Peace Train by Yusuf Islam (Cat Stevens)


Well that is something... he may have turned to Islam... but hay give him a listen.


Bee Gees - How deep is your love (Live)




Jerry Garcia & Bob Weir - Letterman 1987 Part One

Jerry Garcia & Bob Weir - Letterman 1987 Part Two



Okay, it has been a long long day... I'm gonna pack it in... see ya'.If you cannot stand the youtube... please leave a message.

i got nuthin'

The world of AVM news is quiet... hoorah!
I am fixen to go walk about trying to get a job... wish me luck.
see ya'
R

AVM and stuff...

HIS will, and HIS will Wednesday

Welcome back to "His will Wednesdays!" ... Finally, right?!...

read all the rest at here

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There are a lot of stuff to read... and the songs aren't to bad.

Where am I today? I don't know... Don't get me wrong I know that i sit here... typing on my laptop... i just don't know were i am in life... it was easier when i thought that i was a goner... then all the BS in life was just that BS... it made me upset sure... but it was BS and like they always said "BS, given enough time turns to flowers." or something like it.

Now it all seems so permanent.

I got to go... if you want buy some stuff...

American Idol and theb there were 3

Top 4...
They did Schools out! It was okay...






It was handled by Slash... he was okay... just okay...
Paula did something... called "It's for The Music" it was good...

She was lip syncing but it was good...

Then we got "I'm just a girl" I've already forgot her name... it's okay... she sucked...

okay... time for the basic cut back... who will go home...who cares?
Kris is safe
Daugherty Sings on of his up-coming Hits...
it is alright...


Adam is safe...
Danny...was safe.

Allison.... go home...
I kinda like her... I may buy an album when it gets done.




Well that's it...

see ya!

I wonder if...

I keep doing the American Idol reviews... I am not very good... my memory is short. I can't remember their names when I try to write about theme.

and quite frankly I don't have the words that make it sound like something you want to watch...

It was something else that made me up set... but as I'd hopped... I forgot about it... TaaDaa!

so no news on the avm front... hooray!
I am going to leave you with some youtube...

How Lord of The Rings Should Have Ended


I actually enjoyed the movie(s)...

one more...no? Well okay then... later.

Led Zeppelin

accoustic

Posted by Neo

Thanx Neo...

Led Zeppelin. Well two outta fore...
buy something?




okay I am going to go... buy something... please... perty please

okay on with the show...American idol

American idol

Slash... was the moderator.

first up... Allen

He dose Led Zeppelin.
"Got down with Led Zeppelin."

He really did well... but I knew he wold.


second...
The one girl...Allison.
Did okay... the judges gave her mixed reviews.

I think she did well... the girl can sing.




Next came... Duets... Danny and Kris
zzz zzz zzz....
they did something by someone...
Queen...

then came commercials lots and lots of commercials.
okay then came Kris...
he did The Beatles...






I am having a hard time with this tonight.
So let me do this...
We'll see tomorrow who got the ax...



I'll tell you tomorrow... what's bothering me... see ya'

http://www.americanidol.com

youtube...

Red Hot Chili Peppers - Higher Ground (1989)


Jim Croce - I Got a Name (1973)


Metallica Nothing Else Matters Woodstock 1999


It's a weird combo... but it is what I like...

Guess what?
My wife is taking a step-son to the hospital... he is having withdraws.

I don't know how my wife deals with it... I don't handle it at all.

In the past I controlled my addictions.. I cold give anything up... it was no problem. (other than cigarettes) I just did not do enough... I guess.
These 4 boys are just a mess... Well one is fine... more or less.

but he was doing time for armed robbery when we met... unbelievable.

oh well I have to go...
peace,
R

AVM news...

AVMSurvivors.org at AVM Foundation's 4th Annual Awareness Walk

I had the pleasure of attending the AVM Foundation's 4th Annual AVM Awareness Walk in San Francisco early Sunday morning. Sports Basement hosted the event (and a small get together the night before - thanks!). It was fantastic meeting some of the people on AVMSurvivors.org in person. You'll recall that my friend Ben Munoz started the site after AVM threatened his life. I heard a lot of stories and was blown away by the sense of strength coming from the survivors and their family & friends. These are some of the finest people I've had the pleasure of meeting in my life.

We all showed up early Sunday in our AVM Awareness t-shirts and I took a video of the walk below (when viewing click the HD button in YouTube). My favorite part comes at the end when Jaclyn, a 9 year old girl from Pennsylvania, who has endured 4 operations offers advice to everyone with AVM out there. Inspirational isn't a strong enough word...


from...
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Hello... I got nuthin' to report.
I got to go... maybe later...

AVM news... about me... and Woodstock...

We Walked for AVM Awareness!

The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to Angela) and Sports Basement for being so wonderful with putting this all together and giving us an opportunity to raise money and awareness for this rare condition. The AVM Survivors Network team raised over $10,000 for this cause! Go Team!!! Thanks to everyone who donated to my personal fundraising page. My goal was $500 and with your help I ended the effort with $900! Almost twice my original goal. What great people I have in my life!

Josh and I were very excited to meet our AVM friends/family on Saturday night, and then walking with them today. Ivanna, Doug, Nich, Matt, Kim, Dan, Justin, Jaclyn, Scott, Margie, Greg, Serene, Camellia, Jane, Mary, Greg's nephew & fiance and Margie's friend (sorry I forgot your names,) Jaimee & TJ and ALL of their blue hat supporters, Carolyn & her brother, as well as my family; Taryn, Jason, Jan, Dave, Pam, AK, Billy, Glenda, Trina, Kevin, Summer & Reese... thanks to everyone who came out this weekend to make this event memorable and to support and celebrate our "brainers!" This will be a memorable weekend for me and I have appreciated all of the support and friendship from everyone!

Click HERE for a slideshow of pictures from this weekend. I will be uploading additional pictures as I get them from the other walkers. So check back in a week or so to see more pics of this wonderful group of people.

The weekend went by so quickly and I'm sad that it is over! I can't begin to explain how important it has been to make these connections with other AVMers. And I know they all feel the same way. We share a bond from an unfortunate situation, but a special bond just the same.


If you look very closely you can see the Golden Gate was the backdrop for our walk!

I leave again on Wednesday for Denver with Jan as my travel partner. I am counting on these trips to continue on the "easy" path that I have been on for the last few, but know that the chance of a road bump is always there. I'm feeling strong and healthy, optimistic and content. Thanks to everyone who continues to keep me in their thoughts and prayers. I really do appreciate it.

I'll update again when I get back from Denver.

Shalon
from...
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It's a great avm news thang... isn't it...

Okay where was I...
I went to go see a nephew-in-law who is being held by the state of Mi. He is about 9 hrs away. Is it fair.... you betca. He is sorry that he did what they say he did... he is a new man... BULLSHIT. I am sorry but he deserves his sentence. He ran from the cops... he had an accident... his little boy was in the car... he was high on crack.
The little boy was not hurt... luckily.
I have an aquantinsis with a crack web site... it is www.devilscandy.com.

Give him a look if you like...

Okay, what about me... I had a MRI... it shows no further bleeds... it is like an MRI I had back in 2007. I should be happy at the results... but I ain't.
I guess I wanted there to be a reason for my moods... and my feelings of doom... I guess there was... but I wanted something tangible... something I could wrap my hands around.

Result: Double up on Zoloft. See what happens. I know a few of you think of anti-depressants as a crutch. And maybe it is... But I have to tell you that they are a needed crutch right now.

okay gonna go... first have some youtube...

Woodstock 1969 - Matthews Southern Comfort


Country Joe McDonald - "Feel Like I'm Fixing To Die"


Crosby Stills Nash A Long Time Gone Woodstock 1969


okay got t go... see ya'

AVM News...

Collinsville wheelchair athlete signs with U of I; 'I'm totally excited'

Has overcome tragedy with an strong work ethic, desire to excel

BY DEAN CRIDDLE - News-Democrat

COLLINSVILLE -- Rachel Voss has turned a tragedy into a triumph of the spirit, mind and body.

Just 12 years old when she awoke the day after Christmas in 2002 unable to move her legs as the result of a rare condition, Voss could have given up. But she didn't. She used her love of sports, a strong work ethic and intense desire to excel to become a top-notch wheelchair athlete....

from here...

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I've been driving all day... yes I do it with one hand. As a reuste I am tired... so tomorrow with news of me...

buy some stuff...


Weird isn't it... okay gotto go...