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Showing posts with label mri. Show all posts
Showing posts with label mri. Show all posts

Monday, May 04, 2009

AVM news... about me... and Woodstock...

We Walked for AVM Awareness!

The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to Angela) and Sports Basement for being so wonderful with putting this all together and giving us an opportunity to raise money and awareness for this rare condition. The AVM Survivors Network team raised over $10,000 for this cause! Go Team!!! Thanks to everyone who donated to my personal fundraising page. My goal was $500 and with your help I ended the effort with $900! Almost twice my original goal. What great people I have in my life!

Josh and I were very excited to meet our AVM friends/family on Saturday night, and then walking with them today. Ivanna, Doug, Nich, Matt, Kim, Dan, Justin, Jaclyn, Scott, Margie, Greg, Serene, Camellia, Jane, Mary, Greg's nephew & fiance and Margie's friend (sorry I forgot your names,) Jaimee & TJ and ALL of their blue hat supporters, Carolyn & her brother, as well as my family; Taryn, Jason, Jan, Dave, Pam, AK, Billy, Glenda, Trina, Kevin, Summer & Reese... thanks to everyone who came out this weekend to make this event memorable and to support and celebrate our "brainers!" This will be a memorable weekend for me and I have appreciated all of the support and friendship from everyone!

Click HERE for a slideshow of pictures from this weekend. I will be uploading additional pictures as I get them from the other walkers. So check back in a week or so to see more pics of this wonderful group of people.

The weekend went by so quickly and I'm sad that it is over! I can't begin to explain how important it has been to make these connections with other AVMers. And I know they all feel the same way. We share a bond from an unfortunate situation, but a special bond just the same.


If you look very closely you can see the Golden Gate was the backdrop for our walk!

I leave again on Wednesday for Denver with Jan as my travel partner. I am counting on these trips to continue on the "easy" path that I have been on for the last few, but know that the chance of a road bump is always there. I'm feeling strong and healthy, optimistic and content. Thanks to everyone who continues to keep me in their thoughts and prayers. I really do appreciate it.

I'll update again when I get back from Denver.

Shalon
from...
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It's a great avm news thang... isn't it...

Okay where was I...
I went to go see a nephew-in-law who is being held by the state of Mi. He is about 9 hrs away. Is it fair.... you betca. He is sorry that he did what they say he did... he is a new man... BULLSHIT. I am sorry but he deserves his sentence. He ran from the cops... he had an accident... his little boy was in the car... he was high on crack.
The little boy was not hurt... luckily.
I have an aquantinsis with a crack web site... it is www.devilscandy.com.

Give him a look if you like...

Okay, what about me... I had a MRI... it shows no further bleeds... it is like an MRI I had back in 2007. I should be happy at the results... but I ain't.
I guess I wanted there to be a reason for my moods... and my feelings of doom... I guess there was... but I wanted something tangible... something I could wrap my hands around.

Result: Double up on Zoloft. See what happens. I know a few of you think of anti-depressants as a crutch. And maybe it is... But I have to tell you that they are a needed crutch right now.

okay gonna go... first have some youtube...

Woodstock 1969 - Matthews Southern Comfort


Country Joe McDonald - "Feel Like I'm Fixing To Die"


Crosby Stills Nash A Long Time Gone Woodstock 1969


okay got t go... see ya'

Thursday, April 30, 2009

got my mri back today...


and the results were...

...


...


....


....


fine!

I still only have 1/2 of a brain but it was the half I was using anyway.

Sorry I put you through so much... truly.

Today is a bad day... I won't try to explain it... but know it ain't 'cause I'm bleeding.

gonna go... say hi to whomever.


Tuesday, April 28, 2009

a lil 'bout me...

I have been feeling bad the last couple of days... so I'll keep this short...

I love 80's music... and 70's music too.. that is why when you tune in there is so much stuff here.

Don't get me wrong I like the stuff that is real new too... It is just 70's and 80's got me in there grip...


Led Zeppelin-Stairway to Heaven


cat stevens Wild World



Iron Maiden Flight 666 - Run To The Hills



Mexican Radio...Wall of Voodoo.


Men at work: Land down under!!!!


Men Without Hats - The Safety Dance







okay... here is the breakdown I have an MRI scheduled for tomorrow. I'll give you an update... as soon as I can.

Saturday, April 18, 2009

Alright... no hicups!

No hiccups for me!!! Yaha!
I still don't have an appointment for the MRI.
I don't care...

Really what will they tell me... I got half a brain. Whoopppeee!

Okay it is time to do some youtube...

David Bowie - Let's Dance


David Bowie- Starman


David Bowie- Space Oddity
That last video was from 1969!!! Oh my god... I'm getting old!


David Bowie - Ziggy Stardust

so old... so so old....




I could go in but I wont... It was for a friend... who is lost... I hope to see you... I hope you are well...

Wednesday, June 11, 2008

i do have an AVM...


i was diagnosed with an AVM about 5 years ago. I had it Gamma-Knifed. The surgery was easy... if it would have worked i would not be writing this today...

Thats why i post so much on them.
It seems that where it was they thought it was gettable...

What it has damaged is my ability to wright and move my Right side.

it is funny, i was going to schedule an MRI, when it sprung a leak...

so now you know....

I will right a little more when i have more time.

Male ,41 years of age.
pic is a joke... ha ha ha

in the mean time here is a few things from Amazon.


go ahead... i really like them... you may to.

oh ya, it has been nearly 3 years since it sprang a leak... I think?