This is just my little place in the world to blog about whatever comes to mind. I plan to review books, movies, music, bands, bars food and restaurants, along with my wife, step sons, marriage past and present, anything is fair game! and AVM's
I should have waited before quitting my last job... but what are you to do with an up stealer! Especially when he's a friend of the CEO. I was expecting a call... but when it did not come... I knew something was up.
silly me...
You know what? I was looking for a picture of me, on Google. There are some 90K pictures with my name... but only one of me... that's depressing.
I gotta get a camera!
Split Enz - One Step Ahead
Devo - Live 1980
Thompson Twins - Hold Me Now
Now I don't feel so bad... I could not find my friends either. (yes, I'm talking google search.)
Charlotte Bennett and TAKARA Born with a rare condition called Klippel Trenaunay Syndrome (KTS), a disease that affects the entire vascular system, Charlotte has endured severe discomfort and complications throughout her life. After a couple of extremely bad years and, due to being hospitalised in isolation, Charlotte lost touch with her group of school friends that had now moved onto college and found it difficult to interact with other students due to the timespentalone. Recognising that her … Author: OfficialCrufts; Tags: Crufts Friends for Life 2009... from here...
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Good article... ME:
So how have you been? Me? okay really.
Tell me if I'm wrong... The Americans With Dissablates Act... doesn't it include ME? I became disabled while working. I was basically told we don't need you... nothing more. They did say to Unemployment I was fired because I was disabled. Sure I am disabled... but I can still do my job. What do you think? Leave a message .... Please...
Guess what? My wife is taking a step-son to the hospital... he is having withdraws.
I don't know how my wife deals with it... I don't handle it at all.
In the past I controlled my addictions.. I cold give anything up... it was no problem. (other than cigarettes) I just did not do enough... I guess. These 4 boys are just a mess... Well one is fine... more or less.
but he was doing time for armed robbery when we met... unbelievable.
Hello to all of my friends, family, and fellow AVM'ers! I haven't updated in a while but have a few things to share!
First I will start off by saying that I completed trip #12 in Denver, and everything went well. I feel good. I feel more like myself than I have in a long while. I finally am starting to feel like a "normal" person again. No longer in constant pain, no longer so worried about bleeding. And boy, is it a relief! I am confident that these treatments are working, and I'm pleased with the progress I have made in the past year. I have no doubt that I am on the right course and just need to stay steady and strong.
You can read my entire trip report on my website here. It was a good trip and I got to meet up with Allison again and this time her mom Jody as well. Also, I had a surprise when Sharon, another woman I met through my website, was also in for treatment the same day. I posted "glamour shots" with both girls in our fashionable hospital gowns! I really need to get a move on making something a little more flattering to wear on the next trip!
The weekend before we left for Denver, Josh and I met up with Camellia and her family for a Tea Party! It was great to meet them after emailing so often with Margie. The girls are beautiful and both very delightful! They played dress up a little with the fun stuff at the tea place (so did Dad!) Camellia ordered Bubble Gum tea (seriously made with bubble gum!) and Serene had Tutti Fruity which she added just the right amount of milk to, in order to create the perfect PINK tea! It was nice to connect with them in person. I think we will definately keep in close contact with this family for years to come!
And finally, I wanted to just update about the upcoming AVM Awareness Walk in May. Details are coming together and I just need to register for the walk and get my donations page up and running. I hope that many of you will be able to join me in person and enjoy a beautiful day in the city, walking at Crissy Fields for something that is obviously very important to me!
As always, thanks to everyone for your continued support, encouragement, and love!
---------------------------------------- And a half.... Transcranial doppler study of cerebral arteriovenous malformations after gamma knife radiosurgery Park S-H et al. - These results suggest that AVM vessels with high Vm and low PI values return to normal as the nidus of the AVM is obliterated after GKS. Although there was a trend toward a reduction of the Vm values after obliteration, this trend was not significant, except when the <> go read... from here ---------------------------------------
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I now I put music where I normally put AVM books...
but I had a day that needs this... It was rough... no bad but rough non-the-less. Have some youtube ...
the beatles - HELTER SKELTER Wow I had forgotten how bad that was....
The Beatles - I Am The Walrus There that is better...
Lucy in the Sky with Diamonds
yep, it is a beadle's kida' day...
okay that's enough. Gotta go... gotta try posting on my other blog... C-Ya!
Thar is nothing new in the old AVM health sector. (Nore my spelling) You got lucky yesterday... no luck for you today! youtube you go... Real Ghost Footage
My buddy Ben Munoz and I started a website called LivingWithTN (http://www.livingwithtn.com) to help patients and family members suffering from Trigeminal Neuralgia (TN) find each other and provide mutual support.
According to Wikipedia, TN is a disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. About 45,000 people in the U.S. and over 900,000 worldwide suffer Trigeminal Neuralgia. TN is an incredibly painful condition. To get an idea of the magnitude of this pain, check out the video below. It's heartbreaking what TeslaGirlIM goes through but also inspirational that she fights through it and even chooses to publicize the condition so that others can better understand Trigeminal Neuralgia.
The idea around patients and family members supporting each other is Ben's. Two years ago, right before our 2nd year at Kellogg began, Ben suffered an aneurysm due to a condition known as AVM. Somehow he got himself to the hospital and survived hours of emergency surgery. Ben is lucky to be alive, and we are lucky that Ben took this experience and built on it. While in recovery, he had a very hard time finding other AVM patients. He felt isolated but decided to do something about it. He used an Internet service called Ning to start a social network called AVM Survivors. The AVM community found it and a year later, the network is thriving with about 450 members. I've been a member of AVM Survivors since day 1 and I'm in awe of the support, positive thoughts and sense of family found at AVM Survivors and I check in often.
Last month, Ben approached me about extending the AVM Surivors concept into Trigeminal Neuralgia because he had heard about and then researched what a difficult condition it is. LivingWithTN is our attempt at extending the goodwill, support and information flow that AVM Survivors has fostered. Hopefully you can check it out, participate, spread the word and please let us know if there is anything we can do to make it better. ----------------------
There is also a TN youtube , it is well worth your time. I am a member of AVM Surivors, it too is well worth my time. So that's it (I am going to post a few at my other blog) Have a good day.
actually today i feel pretty good. can spell worth a banana... but hey what da ya want.
feel like a little youtube...
I Do.
I was only 19...
Naked Eyes - "Promises Promises"
and...
Madonna - Physical Attraction
I just love the 80's... can't tell... can ya.
I have been suffering the ol' Duke Lacrosse vibe. I may start putting some up... but it will not be in blog. I'll let you know. You tell me if you want it.
Thank You, know that by giving me a small donation you have made a happy man.
I have had an AMV, a head bleed, and now have only my left hand to type with. I try. If you think that I try, please give.
