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Friday, January 23, 2009

Nothing in AVMs not evan any hot tub News!

You know it is slow out there when I bring up my other blog. I am stuck in my house... so it ain't that I get a feeling for whats going on in outdoor life.

Next week I may be absent as I put in my first 40 hr. work week, I will try to keep this up... but there are no promises. It aught to be funny, as I try to stay awake for those hours. I cannot due it here...

Have some youtube...

Thats it... good by.
R

Wednesday, January 21, 2009

mmmmhh Think I may start this with "Not Mine" in the Title...

I think I've got my readers confused...There are a number of posts that are not mine. They are merely posts that I have a "feeling about". Or that have a theme that I enjoy.
Up till this point, I put a link to the original post at the end of it, thinking that my readers will figure out that I am not the original poster.

So I think I'll start the next of with that in the title.
what do you think???

Okay enough of that.
News today is Thar ain't No news!!!
This is good.
Unfortunately this forces me to give you Youtube!!!


Confessions of a Grey Part 1: Rectal Probing


Confessions of a Grey Part 2

and last but not least...

Anal Probe!

Okay... they weren't AVM related... but they were fun... kinda'

Tuesday, January 20, 2009

AVM Walk in SF May 3rd
Save the Date!!! May 3rd, 2008
I don't have all of the details yet, but for all of my local supporters I would LOVE for you to join me in raising awareness for Brain AVM's with TAAF's Annual Awareness Walk. We are trying to organize for many of the members of AVM Survivors Network to join as well. With luck I will be meeting some of my AVM family in person! What a wonderful day that will be!I'll be updating here, on my website, and over at avmsurvivors.org as new details become available. The event is to raise awareness as well as funds, and we are already working on Tshirts which will serve to raise money and also to unite us as one AVM family as we walk.Check back soon for more details!Shalon
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AVM Walk in San Francisco - May 3
My friends Shalon and Kim (Jacyln's Mom) on AVM Survivors, a patient to patient support group for people with AVM, told me about the AVM Foundation's annual walk and fundraiser in San Francisco. It will be on May 3rd on Chrissy Field. Please put that on your calendar and join me there. Here is the discussion about the walk on AVM Survivors for more information.Shalon is working on t-shirts and organizing a get-together the day before, but at the very least, it would be great to have your participation!
Posted by Kenny Kellogg
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I am actualy posting this my work!
It is slow... so you win!!!
One problem... I don't have spell checker on this computer.
So you might get anything.

The avm stories are real good, do me a favor give them a shout.
Here's to working! YEEEEHAAAAWWWW!
Got to go...
R
PS. I disided that music would be better than the three AVM related books.
I hope you agree.

Monday, January 19, 2009

News of the Day.

A stranger offers hope

BY PATRICIA ANSTETT
Ronda Collier brings her own story of hope to people with arteriovenous malformation.

Nine years ago, Collier, 44, of Ann Arbor survived the same type of AVM that left Julie Legner Anderson in a coma, and she has recovered almost fully. Fortunately for Collier, her AVM was discovered -- in a part of her brain stem that controls thinking and the heartbeat -- before the tangle of veins ruptured.

Collier is well enough today to run a company that makes salvage yards more environmentally friendly. She also exercises regularly, goes sailing and travels. She has some residual weakness in her left hand and some vision issues that keep her from driving.

After hearing about Anderson's case from the friend of a friend, Collier signed on to Anderson's CarePage and left encouraging notes.

Anderson's sister, Kathy Sipple, saw Collier's messages and asked her to visit Anderson at the Rehabilitation Institute of Michigan. She met her last fall.

"I told her to keep the faith; keeping hope is most important," Collier said last week. "I told her not to listen too much to what people say you won't be able to do. We know so little about the brain. I recovered much better than I expected.

"They also tell you there's no improvement after two years, but I feel I continue to improve."

Collier reads Anderson's CarePage daily.

"There are days I walk away saying, 'Yes!' pumping my fist, and there are days when there are setbacks and I cry and say, 'Why so much for this one family?'

"I have such respect for her family," she said. "I just feel I've lived with them. I didn't know this family before and now they are very dear to me."


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What is AVM?

BY PATRICIA ANSTETT
Arteriovenous malformation, or AVM, is a defect of the circulatory system, often caused in utero, that creates a tangle of small arteries and veins that can rupture and bleed. These tangles in the brain and spinal cord are called neurological AVMs.

AVMs of the brain and spinal cord affect 300,000 Americans.

Symptoms include headache, blurred vision, slurred speech, vomiting, stiff neck, muscle weakness, loss of sensation in part of the body, fainting, drooping eyelids, altered vision, facility paralysis or change in mood.

Most people with neurological AVMs have few significant symptoms, though some can be fatal. Surgery is the typical treatment.

For details, go to www.ninds.nih.gov/disorders/avms

Source: National Institute of Neurological Disorders and Strokes

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And that's that.
I know what your thinking... why put books that are Kindergarten and 1st grade... well as far as it gos when you first get home after an AVM... at least an avm of the left side of the brain they help.

Until recently I still had some very basic education CD's on my computer. They helped.

Okay now I'm going to go... yall take care.

Saturday, January 17, 2009

Just stopping by...


I thought I would stop by and sat Hi.
No news today... that is good news.

Real good news!


Okay, now a bomb you with youtube videos... but I'll give you a break.
I'm going to give World of Warcarft a chance to kick my butt.

That should be fun.
Right....

Okay I'm going...
Do something good for a change... (just kidding)
Buy something...

Good by....