AVM No!

No avm news for you today. That is a good thing.
It leaves me with a blank when it comes to talking to you... that is a bad thing.

Normally I would post youtubes... but I have to work... and I like to view them before posting them...
...and that ain't gonna happen.
so here have a little amazon... to make me feel better.

So I'll leave a pic of me before the stroke... I don't have any post-stroke... yet.
Gotta get a digital camera... it is way down the list.



There is a bunch of M. Weis to go threw.
Good day...
R

Wow it has been a long long time...

My first post.

Why am I here?

Okay why? I have no idea, I guess like so many others I think I have something to say that people might want to hear. Or maybe I just want to try spelling things in new and more creative ways?
Actually I have been meaning to start a blog.. I was just a lazy bastard and never got around to it, well until now that is.. so I feel sorry for all of you that missed out on all the shit I wanted to say until now.. that's why.

I have been thinking a lot about what i would put in my blog, and even went looking at a couple of "How to Blog" websites.. load of crap if you ask me.
But I did hear good things about blogger, so here i am.. that's the where.
I guess we cover the when with the date stamp..
now All I have to figure out is how?

I invite your comments, and may even tell you to go f yourself if they are good enough.
So I guess this concludes my first entry.. now I guess I will just have to see if I can find someone else's stuff to plagiarize and see how this things rolls..
Peace..
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STRANGE!!!
I will go back and read the old stuff...

here have some amazon...



I just had to do it... I like Midnight Oil.... a lot.
Gotta go.

Okay I have nothing...

Nothing in the AVM dept.
That's good news.

I in turn have nothing about me... big surprise huh.

So here is where I youtube you...

Creepy Grudge Ghost Girl in the Mirror!


Midnight Oil - Short Memory (1983)


Midnight Oil - Beds are Burning


Midnight Oil - One Country


Midnight Oil - Dreamworld
amazon?




Okay, that seems to be that.
I will talk to you tomorrow.
(I hope)

something is wrong..

Lets see if it posts now...

Well I guess I'll have to talk about my self.

OKay... there is nothing going on... for AVM's that is.
I worked today. I made no money... none.

AAAAARRRRRRRGGGGGGG! Okay I don't have anything to add. AVM's are a bitch.

Thay take away your ability to think right. Or should I say, they take away your ability to let others know what your thinking.

youtube...


U40

more UB40


Fart Match... funny stuff.


and a fart too...

AVM News... two for the Road.

one...

Well, this is awkward...

Like running into someone you once dated, who one day, without explanation, just stopped calling. Everything seemed to be going so well, and then--Poof! You see him at the farmers market one Sunday morning, walking hand in hand with someone who is not you, buying flowers for their table, or some stupid arugula for the salad they will later prepare together, and maybe you just want to snatch their Venti lattes and scald the smugness right off of their pretentious little life. Believe me, I understand, but please, before you cause a scene, hear me out and give me a second chance! It's not you, it's me!

Doing the blog was really getting me down. It was a very long year, filled with periods of deep anxiety and depression. The more I thought about or talked about the AVM, the more anxious and depressed I became. Waiting 12 months to have my first post-gamma MRI, with no (medical) encouragement was driving me mad. Every day I feared that the gamma knife was not working, that I was going to have a bleed...I had to stop thinking about it for a while. Like a prisoner, I had to do my own time. A year has passed, and I am eagerly awaiting my appointemnt to ge before the parole board (otherwise known as the MRI tech, radiologist and neurologist.) I am hoping that they will give me life.
from...
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two...
My wife is walking for AVM Awareness! Please help if you can!Hey everyone! I'm posting this up for Shalon, (my wife for those who we haven't met yet)! It would be great if you could help, thanks for checking it out!

Also, here is a link to her website: Home ?(Shalon's AVM Story)?



Hello friends & family!

As you all know, I've been fighting this AVM my entire life. And most of you have been there to witness my struggles and my triumphs! Recently you have all been so supportive of my journey through visiting my website and my blog, and by supporting me in my frequent trips to Denver. And I am so very thankful to have all of you in my life.

On May 3rd Josh & I will be participating in an awareness walk in SF. I would LOVE for you to JOIN ME IN WALKING to raise awareness. I know many of you are local, so take the short drive to the city and enjoy the sites as we do a quick 1 mile walk at Crissy Fields. It will be a fun day!

The Aneurysm & AVM Foundation (TAAF) supports those affected by BRAIN AVM's And while mine is not in my brain, the research will ultimately benefit all of us suffering from this condition. Plus I have met so many wonderful "Brainers" through our support network at AVM Survivors Network: AVM Support Group - We're AVM Survivors, Here For Your Support.... They are my family and I am dedicated to supporting this cause!


For information about the walk, and to register, please visit the page below. When you register you want to join TEAM AVMsurvivors.org!

TAAF: Events: 4th Annual Awareness Walk

If you can't make the walk, but would still like to participate, I also have a fund raising page set up for donations. I realize that many of you have already donated to me personally to help with my trip expenses, and don't expect that you will continue to donate to everything I get involved with! I am so thankful for the donations I have already received. I can't thank you all enough.

However, if you are interested please visit the page below.

Active.com Donations

Please forward this email to anyone you think would be interested in being involved with the AVM Awareness walk.

I hope to see many of you in the city in May!
Shalon

__________________
Joshua


“Some dream in color, I dream in 4 wheel drive."


My Wife's AVM story

www.avmsurvivors.org

www.findchristiewilson.com

from....
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Yep, it's me...
To give you an idea of why I put books from Margret Weis in , you really have to read them.
Thay are just DA%M good.

I am home today. And so tired from yesterday, I need to slow down when there... good luck.
People ask what is it like having an AVM?
It's real hard to say. It is like having a piece of your brain missing. You remember what it was like when you had it.... but when you go off and try to use it... you just can't do it.... it is frustrating.

Well enough of me bitching about things I cannot fix.
Here have some youtube.


There ya go... keep smiling.

Got one...

Reba McEntire, Red Steagall Headline Chicago Benefit Concert for Area High School Wrestling Coach

The country artists will perform at the Sears Centre Arena March 21; proceeds to pay medical expenses for retired Maine West High School wrestling coach Richard Carlini.

(PRNewsChannel) / Hoffman Estates, Ill. / The “Queen of Country” Reba McEntire will take to the stage at the Sears Centre Arena along with Red Steagall for a benefit concert on March 21 to support the mentor of hundreds of former Chicago-area wrestlers.

Former students of Coach Richard Carlini created a foundation to help pay for his medical expenses.

The Teachers, Coaches and Students Foundation was formed as a 501(c)(3) nonprofit to help support the retired Maine West High School wrestling coach who suffers from AVM (ArterioVenous Malformation).

Reba McEntire heard about their efforts and wanted to help, so she teamed up with her own mentor and country music legend, Red Steagall, to raise money for Coach Carlini.

more...
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and now... ME!
I went to work... not one customer stopped by.... Why do I do this?
I do not know.
The youtube below is funny.
Here I will get another...

REM...

REM again...
I always dug thos guys... Okay I have to go make myself busy with my other blog... click here if you have not seen it yet.

here you go...

Got something for ya'

That's funny!

Good bye.... R

Got one... I feel bad so you get none of me.

Okay I'm gonna keep this short...
I (again) don't feel good.... We got one... I encourage you to go have a peek.

Rare brain disorder strikes Hayden teen

Clayton Huyser remains in intensive care

19-year-old Clayton Huyser has been diagnosed with a rare disorder that causes malformation of veins in his brain.

from...
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Relay go give him a look...

Well today I got nuthin'!

Well we did have a run of them.
Today... well let's just say Nada! So what to do with you all... I know what...

Ya mon!! Ziggy Marley - Tomorrow People (1988)
and we can't forget...

Mental As Anything - Rock 'n' Roll Music (1988)
Well that's enough... I think.
here buy some stuff....

What can I say... I have 1988 on the brain!
Good by.... for now.