Monday, April 27, 2009
From Kansas City.... AVM Story.
I asked Terry last night how he felt his recovery was going. It has been 16 months since his rupture. He told me that he thinks it is going to take a lot longer then he thought. I told him that I would just like to see him at least start trying to do at least one thing every day to help his brain heal. I have bought crossword, find-a-word books, saved brain games on the computer, etc. but he has a hard time remembering to do it! He still is very fatigued most of the time. Last night he wanted to have an italian sausage sandwich. He used to make this all the time and I have never made it myself. He was in the kitchen for hours, but he did a great job! It is the first time in 16 months that he has actually started and finished a project! He did lose focus a couple of times, but then he got right back in there. Of course, I don't think he actually ate any of the italian sausage but he made it!
I'm a little nervous about speaking at the stroke recovery compendium this week. They just want me to tell them about our support group and how we started. I am hoping that by doing so that it will get the word out to more people. At our last meeting, a woman came and told us that she has known for a year that she has an aneurysm and is still trying to figure out what to do. She is older and already has some weakness on her right side. She is so fearful of something happening during the surgery. I can't blame her because I remember feeling the same way! It is such a hard decision to make. Of course, if you have a rupture, there is no decision. I remember that I could not have my aneurysm coiled (a much less invasive procedure) because the neck was too big. Now, after 8 years, I can say I am happy that I had it clipped and I don't worry about it at all (well not too much any way!).
Until next time - take care - come back!
from....really go check them out!!!
They also have several other web sites bookmarked. A real plus to those who have had one... and those who take care of us.
I had an interesting day , yesterday.
All day long I felt sleepy... took two naps.
Got ready for bed at 9:00
What happened next... well lets just say I did not like it... it was a flu???
I felt like I was going to die... yes die... (needles to say... I did not)
It was kinda weird... I had good old thumping in my brain case... double vision... partial paralysis... today I wake up... and feel fine. Strange.... very strange.
I know that I should tell my wife. but I don't think I am going to... she is more involved in her neck surgery. (And getting pills... she is an addict.)
So here I sit... wondering who I should tell...
and playing some youtube for you...
Led Zeppelin - Stairway To Heaven
Dazed And Confused - Led Zeppelin
if you want to buy some Led Zeppelin...
That is that... see you tomorrow...