This is just my little place in the world to blog about whatever comes to mind. I plan to review books, movies, music, bands, bars food and restaurants, along with my wife, step sons, marriage past and present, anything is fair game! and AVM's
Findings: Huge vascular mass in right cerebral hemisphere which is composed of serpigenous signal void vascular structures, multiple feeding arteries (arising from both anterior and posterior circulation) and draining veins (draining into the superior and right lateral sinuses, vein of Galen and straight sinus)
When will they come out with a cure... ------------------------------- That's it for AVM's today... not a bad haul... I have made a decision... <---- I can't spell it (thanks yahoo speller) but I made one none-the-less. I am letting my house go behind... God I hope it's correct... but I don't know what to do... shy of hanging myself (kidding) I am going to keep all of my money makers open, for as long as I can. okay enough of that sad sad stuff... youtube... EliteXC: Heat - Kimbo Slice Vs. Seth Petruzelli
I won't tell you how it ends... but ouch! and now one for the ages...
Perhaps I should back-track and talk about how we arrived at brain surgery as The Choice. All the websites and the research I’d done on AVMs thus far yielded 3 options on AVM treatment: embolization, radiation, or microsurgery. Because each AVM is unique in size, location, and involvement of blood vessels, and because each patient is different in age, ability, and health status, no two AVMs can be approached in the same manner. Some are completely inoperable, while others are relatively easily corrected with little side effects. It all depends. That’s where Dr. Zager came in. Dr. Hart could diagnose me, and even tell me the options that were widely available, but it was Dr. Zager’s expertise that allowed him to look at my MRA and MRI scans and say I needed brain surgery. He also said that embolization would be used in conjunction with the craniotomy.
--------------------------------- Me: I forgot my medicine one night. (anti-depression) I felt off... and today I am super sleepy. I am trying to catch up.
It is a shame that I am dependent on these... oh well... now I give you youtube...
My medical treatment is now only a daily tablet of low dose aspirin.
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The recent CT of the abdomen and pelvis (20/3/09) demonstrates that the lesion related to the left iliac arterial and venous system is a pelvic arteriovenous malformation. This is a congenital lesion that given this man's duplicated renal system (left-sided !VC), represents congenital variant in his venous anatomy. The AVM is an incidental finding. There are real risks related to treating the AVM related to embolisation, both locally including to the sciatic nerve and distally to the peripheral arterial tree. At the moment there appear to be few benefits in treating the AVM. Mr Fry is asymptomatic and there is no evidence of distal embolus or circulatory compromise. The AVM in itself does not represent a problem as a space occupying lesion. At this stage as the risks of treatment outweigh the potential benefits I believe we should adopt a wait and see approach before we intervene in treating the AVM looking for evidence of local symptoms or distal embolisation. The second problem for this man is his chronic aortic dissection. This is stable. The only ongoing potential clinical problem would be aneurysmal degeneration of the false lumen. This can be well monitored with yearly imaging. Similarly, yearly imaging would monitor the AVM. As such a yearly angio CT looking at both the abdominal aorta and the left-sided pelvic AVM would be reasonable. I have given Mr Fry a form for his next imaging. The only other issue for this man is the resolving DVT in his left leg. As I have mentioned in my previous letter, given the fact that the thrombus has essentially resolved and the d.dima level is normal, it would be reasonable for this man to manage his venous thromboembolism risk with long term low dose Aspirin rather than Warfarin therapy. Mr Fry has a pair of surgical compression stockings. At this stage he should wear these for symptomatic relief. From my point of view I look forward to seeing this man again in one year. DAVID HARDMAN
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--------------------------------------- and of course...
As always I want to say how much it means to me to have so many of your prayers! I am very blessed and that is what helps get me through my work days, my procedures, the bleeds - everything I endure! There is always that darned pain! Hmmm... I guess I should start w/the latest news and go backwards? I'll probably jump around and confuse everyone!
At the end of my work day Friday I was soooo happy! I just could not believe another week had gone by and I've got TWO DAYS to spend with Hanz and Mark! (Like Mark says, notice the pecking order)! My baby Hanz is so adorable and unbelievably cute! Such a winning personality! I was showing one of my friends @ the main office Hanz' photo and she could not believe when I told her that he drags that duck that mom gave him for Easter everywhere! Hanz grabs the duck, looks @ me and then starts running around the house with it, so I'll chase him! Most times, he's too quick, so he'll wait for me to almost catch up to him, before he starts running off again! I can only go "round the dining room, through one bedroom and the hall" about 5 times before I just poop out! I tell Hanz, "Mommie is too told for that"!
Oh! Back to my stuff! Well, we were up late Friday night, so I was waking up about 8:30 am on Saturday. Soon as my eyes opened up, my first thought was, that I would go get Hanz and bring him back to bed! My neck felt wet, so when my hand touched that area, I could pretty much tell I would be seeing blood. Yup! So as usual, I go, "Mark, I'm bleeding"! As usual, he goes, "You are kidding"! So we start the drill! I was dripping blood on the way to the bathroom, and I got my dressing off my face and I could see where it was bleeding from. Mark had just pointed out that area the night before when we was changing my dressing - saying that the very same area looked like it would be giving me trouble! Actually, soon as I removed the dressing and put some pressure on the area, it stopped bleeding very soon! Mark cleaned the area and redressed it and we just went about our business! I ran a couple of errands, then came home to spend more time w/my two favorite people! Later that night, I grabbed Hanz and he and I headed off for bed! Mark, I knew would be falling asleep on the couch, which he did. About 1am I heard or felt something, so I turned the bedside lamp on. I saw Hanz was up and looking @ something on the bed. Hanz had thrown up, poor baby! I looked @ it and apparently he had eated some gold threading from one of the cushions near where I had my Build a Bears, Saba and Rulon! Hanz is always wanting to get to Saba, and I'm sure that tassle w/gold threading caught his eye! Hanz is like having a toddler around 24/7! We have to watch him and everything he puts in his mouth! Course we had to change the sheets, but he ended up sleeping w/us that night all the way through for the first time!
Anyway, it's late and I'm gonna wrap this up soon! Here is a photo of the dinner my sister made for us on my birthday, May 1st! She made arroz con pollo (chicken w/rice) and mom made tortillas!
My next trip to Denver will be June 10, 11 and 12th! I need to be doing some exercises to make sure my mouth can open wider or the anesthesiologist is threatening me w/a trach! Yikes! As always, thank you all so much for all your love, support and prayers! Could not do this without you!
Don't forget! If you get a chance, check out my buddy Shalon's blog and website! She always has great stuff on there and she's adorable! You can get to her sites from mine!
Love to all!
Cyndi
Oh! I almost forgot to tell you about something that happened the other day @ work! I had gotten a call from a lady that had been there before w/a defendant. She is his caregiver and being in the medical field, she was interested in learning more about my avm. Her name is Julie Ann - and she came into the office again and surprised me w/a nice gift! She gave me a wooden box that opened up, and inside were a couple of things! One was a silver compact/pillbox and on the cover of that it says, "Being normal is over-rated"! There are also little slips of paper in that box, that Julie Ann says when I meet an obstacle in dealing w/my avm, I should write that on one of the papers and pray about it. She herself put some wooden letters on the cover of that wooden box that say, FAITH BOX and it also has a red heart on the front of that wooden box! Julie says she was so impressed with my great outlook on everything in dealing w/my avm, and she was moved by my blog and all I had written! Wasn't that sweet of her to come by and tell me all this! She is really nice and wants to help me in any way she can! I tell her that is one of the reasons I have this blog - to help people know what someone w/an avm goes through on a daily basis! So that more people can understand what having an avm is all about!
ain't she a hoot... from -------------------------------------------
--------------------------------------- I don't know why... but I have a real thing for Led Zeppelin. I guess it is from having a brain AVM.... :-)
Yes for those who are just joining us... I have a brain AVM. It first showed it self in 1999 (i think) with a bleed.. from there I had Gamma-knife surgery... I was told it was goan... I had regular MRI's every 6 months and then every year. (time flew by) Until summer 2004... when it popped! I was damn near killed... I have very little memory of the next 6 months. In fact I have very little memory since... I was fired from my job... I used to be a Manager at Nordic Products. (A Hot Tub Manufacture) I made an okay living... $54,600/yr. I was given SSI... to the tune of $1500 per month... after I deduct my medical insurance I get $1400... I, with my wife's help, have gone through my life savings... About $70,000. I don't know what's going to happen... but it ain't gonna be pleasant...
So excuse my idiot tendances as I try to get my ability to type back... and my ability to remember what happens one minute to the next... I would normally say "help me right here... but what would come of it.
Here have some youtube...
Dazed And Confused - Led Zeppelin (Video)
I don't know if this will save or not... Well see ya.... later.
It is my understanding that it goes either one of two ways with avm's. That either your avm is small and therefore more likely to cause a hemorrhage. Or it's bigger and puts you at risk of developing seizures. Either of which would be monumental just in having the risk of having something so serious occur while behind the wheel of an automobile. My point is that I believe that my doctor may have wanted to sweep under the rug this "incidental" finding, by calling it as such. I had to convince him to show me an image from the mri, and when he did it was this little white form the size of maybe a dime in relation to the rest of the brain. I'm unaware that even big avm's are anything but nearly microscopic. I mean we're talking about capillaries here, no? The thing is I was going to this hospital cause it was free at the time, and they are over-booked, and he was finishing his boards or whatever so I don't think he wanted the stress of dealing with me and my hysterical nature. Plus I have a history of psychiatric disturbance, so furthermore he would probably be wary of taking on such a difficult case. I'm pretty sure I've got a major cns disorder that is worsening, even if it's schizophrenia. No one has diagnosed me as such, so it's not that I'm having trouble accepting that diagnosis or something. In fact, I see it as all the same. It's all just a state of mental decay reflective of physiological decay, in my arrogant opinion. What does anyone think about any of this. Thanks in advance.
Saxby R ---------------------------------------------
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Cerebral Hemorrhage
What EMS providers need to know about cerebral anatomy and common forms of cerebral hemorrhage
This CE activity is approved by EMS Magazine, an organization accredited by the Continuing Education Coordinating Board for Emergency Medical Services (CECBEMS), for 1.5 CEUs.
To earn your credits, sign up for this RapidCE course online or log in to your account directly at www.rapidce.com. Or, to print and mail a copy, download the test here. The deadline to take this test is June 30, 2009.
OBJECTIVES
Review the anatomy of the brain
Discuss intracranial hemorrhage
Discuss subarachnoid hemorrhage
Review prehospital treatment of cerebral hemorrhage
Unit 6 responds to a call where law enforcement report that the patient was involved in an argument that turned into an assault. During the assault, witnesses saw the adult male being hit in the head and face several times with a baseball bat...
I can't go to any more basketball games," 10-year-old Christopher Banks said, teary eyed"Why not?" his mom wanted to know.
He pointed to his head, shaved for surgery with a still-raw incision marking the spot where doctors had removed the tumor from his brain. "Because of this."
Kim Banks looked at her son. For almost two years, she'd waited for a moment like this one, a moment when her son faced a challenge she could help him with without consulting specialists, without undergoing tests, without traveling halfway across the country. Here was a problem she could solve.... read more... ---------------------------------
if you want a new look buy a book...
------------------------- okay wassup with me... nothing really... I had turkey for dinner... and I may be allergic to it... i mean i am really sick... so i'm gonna make this short...
i have a friend who loves my photos.. so this is for you...
okay there you go... pics of me... i don't know what you see in me...
Led Zeppelin - Black Dog - Rare Acoustic
After hearing the lovely fake that was a youtube I thought I had better put some led zep on... go ahead and buy something... or don't.
I find it strange writing and not really knowing if anyone has found us. My hope is that when someone finds out they have an aneurysm or avm, or a family is suddenly thrust into the chaos of a sudden rupture, they can find our blog and receive information and comfort. I think one of the first things you do when you are confronted with this, is to go online and research. It really is amazing what is out there and I know from personal experience that it does help to be able to read and research. I have found great comfort in several of our websites listed here. Sometimes just knowing that someone else is having the same issue or problem is helpful. It's good to hear what someone else might be trying to help.
I asked Terry last night how he felt his recovery was going. It has been 16 months since his rupture. He told me that he thinks it is going to take a lot longer then he thought. I told him that I would just like to see him at least start trying to do at least one thing every day to help his brain heal. I have bought crossword, find-a-word books, saved brain games on the computer, etc. but he has a hard time remembering to do it! He still is very fatigued most of the time. Last night he wanted to have an italian sausage sandwich. He used to make this all the time and I have never made it myself. He was in the kitchen for hours, but he did a great job! It is the first time in 16 months that he has actually started and finished a project! He did lose focus a couple of times, but then he got right back in there. Of course, I don't think he actually ate any of the italian sausage but he made it!
I'm a little nervous about speaking at the stroke recovery compendium this week. They just want me to tell them about our support group and how we started. I am hoping that by doing so that it will get the word out to more people. At our last meeting, a woman came and told us that she has known for a year that she has an aneurysm and is still trying to figure out what to do. She is older and already has some weakness on her right side. She is so fearful of something happening during the surgery. I can't blame her because I remember feeling the same way! It is such a hard decision to make. Of course, if you have a rupture, there is no decision. I remember that I could not have my aneurysm coiled (a much less invasive procedure) because the neck was too big. Now, after 8 years, I can say I am happy that I had it clipped and I don't worry about it at all (well not too much any way!).
Until next time - take care - come back!
--Nancy
from....really go check them out!!! ------------------------------- They also have several other web sites bookmarked. A real plus to those who have had one... and those who take care of us.
I had an interesting day , yesterday. All day long I felt sleepy... took two naps. Got ready for bed at 9:00 What happened next... well lets just say I did not like it... it was a flu???
I felt like I was going to die... yes die... (needles to say... I did not)
It was kinda weird... I had good old thumping in my brain case... double vision... partial paralysis... today I wake up... and feel fine. Strange.... very strange.
I know that I should tell my wife. but I don't think I am going to... she is more involved in her neck surgery. (And getting pills... she is an addict.)
So here I sit... wondering who I should tell... and playing some youtube for you...
Led Zeppelin - Stairway To Heaven
Led Zeppelin-kashmir
Dazed And Confused - Led Zeppelin
if you want to buy some Led Zeppelin...
That is that... see you tomorrow... Peace out... R
It seems like this journey has taken so long, and We've waited for so long to find out whats going to happen, and now that its just around the corner im terrified. This time next week we'l know what they are going to do, wether they are going to let her have the operation or wether they have decided that she just wont survive it...I cant decide what would be for the best? with all the risks involved with surgery would it be better to leave it? And then theres the risks with just leaving it?. Really scared now of what they are going to do and say next week....hardly sleeping, its just such a big decision that we arent going to have any say in....Just felt like ranting...feeling lost all over again.
The recently opened Muenster University Center was paid a visit Monday by South Dakota’s longest-serving Democratic U.S. Senator, Tim Johnson.
The Vermillion native and USD alumnus greeted students and faculty and took a few photos as he received a tour of the new facility. The building’s namesake, Ted Muenster, and USD President James Abbott guided Johnson on the tour....
If you can still believe it ... I still have a headache... Right now it's livable... oh yah... I quit my job yesterday. Now it is a matter of finding one... shoud not be hard to replace... p/t minimum wage is equivalent. I have to get over this headache...
So what do you think... shoud I offer some Led Zeppelin... nah you'll find it in this blog if you are intrested.
Arteriovenous Malformation (AVM) is the abnormal collection and tangle of blood vessels in the brain. Though present at birth, it is not hereditary. AVM is not dependent on race or sex. Strokelike symptoms can be experienced with AVMs because the brain is not able to get teh oxygen from the blood that it normally would.
~Symptoms~
Symptoms leading to the diagnosis of AVM vary with each person. Seizures and headaches are common symptoms with AVMs. Symptoms usually do not appear until people are well into their 30s. Sometimes AVMs are not even diagnosed until a person is elderly or even after death. AVMs can be diagnosed via a CT or an MRI examination of the vessels in the brain.
~Treatments~
Arteriovenous malformaitons can be treated with embolization, radiation, or surgery. Embolization, stopping up the vessel, is said to be the safest and most effective treatment for AVMs.
Go take a look at the last one... Trash Bags??? (I don't know)
I am fuming... I went to work, and got Fu%Ked by a road sales rep... I am supposedly get all of the ups... this douchebag took a phone up... wiche he sold... and then the rotten guy did the paperwork had the guy come in and signe it... did not even give me a chance.
I am mad as hell!!!
Anyway I feel the need to youtube!
Pink Floyd The Wall Flower Scene What Shall We Do Now
Thar is (happily)no a thing to report of in AVM land.
I have had a headache most of today... I am really tired of this... but oh well... So do you want some more Led Zeppelin...or some more The Door's hmmm decisions, decisions...
oh well why not both...
Dazed and Confused...Led Zeppelin
The Doors - The end
There that's better...how about something to buy...
I'm sorry I don't know why I'm here... nothing going on in my life... other than I work for free... a day a week... the rest of the week I sit here and fiddle fattel around with this damn computer... ahhh I should not have shone up today... do me a favor... read the next few page... there are some really good AVM stuff... and us with them would like you to know... my wife is home... i gotta go...
I may have avoided updating this blog for a couple of months. I think I lost hope and faith that I would begin to feel better or that any one of my doctors were listening to me or helping me. I had hoped to have another baby back a year and a half ago before my health went south. I was very sad. I had nothing solid or enlightening to share on the subject of my health. Everything was the same for so long and I felt like I was beginning to whine and I can't do that to anyone who actually takes the time to read this crap. I HAVE TO REMEMBER THAT THIS BLOG WAS CREATED AS A MEANS FOR THOSE WITH AVM's & ANEMIA TO FIND AND SHARE INFORMATION. If anyone is frustrated and at their wit's end for information about these draining conditions, and if I have helped in any small way, then I have served my intended purpose here & am trying to help by sharing my little nuggets of experience and wisdom.
As previously posted, I spoke about the good health and happiness connection, about my slide downward with my health again, having tachycardia and weird heart arrhythmias. I was since placed on a drug to regulate my heart rate; a beta blocker. Theories are that my heart was stressed and was beating too rapidly along with irregular heart beats...a short circuit or misfiring. Well, no kidding it was stressed! My heart was trying to pump blood it did not have enough of through my anemic body. It just blew a circuit I guess. And, admittedly, stressors in my life did not help matters. It is amazing that certain health conditions and people can actually stress your heart.
I am better now. Back on the horse and hopeful that I now have doctors who can manage my health issues in a timely and correct way. Now I am trying to get medical clearance to try to get pregnant again through in vitro. The heart thing is better now and I have since been pumped up with intravenous iron....ALOT of it. I sat for 5 hours (drip, drip, drip) while my body sucked up much-needed iron. This brought up my iron stores which were literally rock bottom, while allowing my body to start making red blood cells to up my hemoglobin which was really beginning to slide. FYI to those who have received or will receive intravenous iron therapy: if you receive 2,000mg of iron or whatever dosage, you may experience side effects such as I did. For three days I had deep-bone pain after my IV. I have never ached so badly in every bone and joint in my body--I mean throbbing, pulsing, aching. It was like the flu from hell. Specific pain was in my hips, groin, thighs, knees & shins. I had to phone the hematologist and they prescribed pain medication for me. I was told this pain was my bone marrow working hard to make red blood cells after having been deprived of enough iron for so long.
I also have since had more endosopy and colonoscopy to search for those dastardly AVM's that can be lurking. The doctor could not find anything. That is not to say AVM's are not there. Remember, people half bleed to death like I did and the source of bleeding was not found by the time I was hospitalized. So, I know they could be there just waiting to break open. Is all the doctors could do was give me drugs to clot my blood (which is probably what gave me a blood clot!), transfuse me with blood and that was it. I will soon do a camera pill study for another look, possibly followed by a double balloon enteroscopy, which is a 4 hours or more procedure in an OR under general anesthesia, which scares me. This may occur only if the cameral pill study finds something I believe.
I am stable and feeling much better than I was 3 months ago. If I can remain stable, keep up my hemoglobin & iron, get the fibroid tumor situation figured out and be healthy enough to have that baby then I will be very happy. I have a pretty good hematologist and some new doctors at The Mayo Clinic and am hopeful they will continue to manage my condition for me. I am still on the doctor merry go round as I call it and again, I am hopeful they will make me well enough. In just one month's time I have seen 2 hematologists, 1 cardiololgist, 2 gastroenterologists, 1 internal medicine specialist, 2 gynecologists and 1 obstetrician/fertility specialtist--hence the Doctor Merry Go Round. Wish me luck! Signed, Hope
from.... go visit... I mean it! ------------------- I am guilty of the Brain thing... I admit it. She has an AVM and wants help... I would offer... but I'm a little F'ed up because of the brain AVM.
...but some of you could help.... go do it.
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Why did I post a towel in the "buy something" place... I don't know why but a towel shows up when you put "AVM" in the search box... but when you put 2 l's in "Led Zeppelin" you get nothing.... oh well... time to get funky...
That’s the patient. He has a long history of a bloody nose for the 7 decades of his life and he has red dots at the vermillion border of this lips. And spiders. Not the arachnid, Mr Parker.
And now he has a knee with rubor, dolo,r calo,r tumor (I have to work the title of the podcast in somewhere). It is tapped and filled with pus and methicillin sensitive S. aureus.
It is odd how when I read an article in a journal and I see a case shortly thereafter. I suppose if I never read, I would never see anything new. The reading causes new cases to appear; I am convinced of the cause and effect.
Patient has Osler-Weber-Rendu, now called Osler-Rendu-Weber, I do not know why they changed the name order since I was a medical student. And the CID article calls it Rendu-Osler, poor Weber is aced out. OWR is congenital form of arterial venous malformations (avm’s), and wouldn’t you know it, they get infections. Brain abscesses and infected joints...
It's been a while. A lot has happened, but I 'll restrict my comments to Canada and my brain as much as possible.
Two weeks ago, I had my follow-up angiogram. The coil on my aneurysm is fine, no problems. The AVM is gone too, but the Dr. saw an "early blood vessel." He thinks it is most likely scar tissue, but wants another angiogram in a year just to keep an eye on it. It's nothing to be alarmed about, for certain, not because were it not scar tissue it could be another AVM, but because we shouldn't be afraid of things that can hurt our bodies, but concerned with our souls. So we'll just keep an eye on it, like the Dr. says. want more.... click here --------------------------------
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Okay I admit it... I Led Zep'ed you again. but They really do Rock! I am going to work again... God knows why. I guess I'm hopping for a full time job... with McMinimum Wage *(plus commission)... hopping and hopping...<--- am I spelling that right? (who cares)
Arteriovenous Malformations(AVMs) are defects of the circulatory system that are believed to arise during embryonic development or shortly after birth. The are comprised of tangled arteries and veins. The presence of an AVM disrupts the normal function of these arteries and veins, which is taking blood away from the heart and returning it to it. An AVM can develop in many different areas, but those in the brain and spinal cord can have widespread effects on the rest of the body. AVMs of the brain and spinal cord are believed to effect approximately 300,000 male and female Americans.
*Symptoms*
Most people with AVMs don't experience any symptoms and they are only detected during an autopsy or during treatment for an unrelated disorder. Symptoms only tend to occur when the damage from the AVM to the brain or spinal cord reaches a critical level. For those people that do experience symptoms, seizures and headaches are the most generalized. Other symptoms include muscle weakness or paralysis in one part of the body, a loss of coordination, dizziness, visual disturbances, and memory deficits just to name a few...
For this week's pathology blog I decided to talk about arteriovenous malformations or AVM. In the image seen, this patient's AVM, which was not previously known about, ruptured, causing an acute bleed and was subsequently treated with surgery. During this surgery, the patient's AVM was discovered and also surgcially treated.
An AVM is a defect where the arteries and veins of the brain are not connected properly. The arteries and veins pretty much become a big jumble of vessels and of course can't function properly. This causes increased blood flow and subsequently higher blood pressure in the area of the AVM. Unlike an aneurysm, there are no set "risk factors" for an AVM. They are considered to be congenital as most people who suffer from an AVM are born with them.
The most common symptom of an AVM is an acute brain bleed. Other symptoms may include seizures, loss of motor functions, loss of senses, mass effect seen on a CT scan, severe head or facial pain. These types of symptoms are often confused with those of a stroke therefore proper screening is very important!!
Treatment for AVM's vary and depend greatly upon several factors including the age of the patient, the location of the AVM, the size of the AVM, and whether or not the patient is at risk for an acute bleed. Treatments may include surgery, radiation, embolization, or a combination of these.
As many of you know, this past year was a very difficult one for me. I was in bad shape with my AVM, lots of pain, ugly wounds, crazy bleeding... And I can absolutely say that I am feeling so much better today. The difference between today and one year ago is like night and day.
While my treatment with Dr. Yakes has obviously played a huge part in my improvement, I also know that the community over at AVMsurvivors.org has been instrumental in my mental and emotional health. I will be eternally grateful to Ben Munoz for creating the site, and am so vey happy to be a part of this new family.
This morning as I logged into my iGoogle page, I saw that my new friend Scott Orn had posted a link from his blog about AVMSurvivors.org. Turns out that our AVM support network is featured as Site of the Month at Northeast Center for Special Care.
Our AVM family tells Ben all the time how grateful we are, and how he is the coolest kid around. But it is very nice to see him, and the site he created, recognized by others for the benefit it offers to people suffering from Arteriovenous Malformations.
Go Ben!!!
from... You go girl!! --------------------------------
Ben is something special... for all of us. Thank you Ben.
Ben gave me a place to vent... and to listen to others with AVMs let me see if I can find my page... hummm can't show it to ya... but I can offer you a look at the page. go here http://www.avmsurvivors.org/ ---------------
some Led Zeppelin for you... (okay fine it is for me!)
Led Zeppelin Black Dog 1973
Led Zepelin - Stairway to Heaven and finally..
Led Zeppelin - Black Dog okay it would not be me if I did not give you something to buy...
and there ya' go... avm's and Led Zeppelin... ya just can't do better than that... can you.
Thank You, know that by giving me a small donation you have made a happy man.
I have had an AMV, a head bleed, and now have only my left hand to type with. I try. If you think that I try, please give.
