one for you... avm, and some of me...

Neerlandia girl needs help from community
Andrew Coffey
Leader Staff

Brooke VanAssen wakes up every morning to a "headache in her cheek."

The source of pain is an Arteriovenous Malformation, or AVM — a knarled mass of blood vessels multiplying at a dangerously rapid pace...

read more...
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Anti-depression drugs:

I am on anti-depression drugs, I know some of you see them as a crutch... and perhaps if my life were sweeter I wold not need them... but it ain't.

More than likely I would need them anyway... you see in a brain that has had an AVM pop... you loose some of the serotonin up take stuff...

The drugs make you / me feel normal... well as normal as possible.

It is sad that I am going to need them for as long as I live...

okay... enough with that...
youtube on the way...


Bob & Tom Show: Tim Bedore & Vague But True

You wold be amazed what you get when you try Bob & Tom on Amazon...

okay enough... c-ya!

I had to...

Spongebob sings Just Lose It by Eminem


okay I'm gonna go...

I'm back...

Brain Aneurysm / AVM support in Kansas City

May meeting
It was a beautiful evening last night. There was a warm breeze; the only thing missing were the palm trees and the ocean. It was a small meeting, only five of us there. However, we did accomplish some things! We agreed on our Mission Statement (which you can see on the heading of our blog). It was decided that we will have a picnic in July.......I hope you will come!! We also discussed having someone design a logo for us. It was just nice to sit and talk. I realized something while we were talking. I've thought previously that some of the survivors are completely recovered. Maybe I felt this because Terry is still such a long way from how he used to be. But I think that everyone has some sort of difference since their rupture. Of course, some are more pronounced but I'm sure there are subtle differences. I'm off for now - hopefully we will have more people in June!
from...
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no job...for me...
boo-hoo...

how about some youtube?



Peace Train by Yusuf Islam (Cat Stevens)


Well that is something... he may have turned to Islam... but hay give him a listen.


Bee Gees - How deep is your love (Live)




Jerry Garcia & Bob Weir - Letterman 1987 Part One

Jerry Garcia & Bob Weir - Letterman 1987 Part Two



Okay, it has been a long long day... I'm gonna pack it in... see ya'.If you cannot stand the youtube... please leave a message.

Oh my god!!! What was he thinking?

How high was he?
OMG! He was snorting something.... and it was not coke.

What an ass!!!!
Billy Bob Whatthefuck.

ahhhhh it lined up wrong... and I can not give you the URL I got it from....

oh well I'm sorry.
I'll try to fix it.... but I don;t know.

She has her own blog...I like her...

"Patient has a small AVM in the brain" Part IV

I demand an addenda to the radiologist's report, and call him for several days until he finally breaks and returns my call at 8pm. It's a war of attrition, and frankly, I have come too far to just surrender now. For his part, he is apologetic and very nice on the phone, though I still think the first report was unforgivably inadequate and unprofessional. It would seem like precision of language would be key in this situation, and that the specialized skills of the radiologist, and the mandate that he and he alone interpret the images, would result in a less laissez-faire assessment. I ask him to bring up the films on his computer while I have him on the phone, and he tells me that the nidus of AVM has shrunken to 9mm by 4mm. This is a reduction of about 50%. My anger towards the radiologist is replaced by gratitude, and relief begins to settle in. About thirty seconds after I hang up I realize that this means that I still have an AVM. That nothing reduces risk except obliteration. That risk is cumulative. That I am getting closer to that 'average age of first bleed' statistic. That I have begun another year exactly were I started the last. When I told my husband that the AVM had shrunk, I actually broke down and started sobbing in the middle of our kitchen. It was hard to explain how I could feel both so happy and so devastated at the same time. More than anything, there was just this overwhelming wave of exhaustion. Tears of joy never tasted saltier.

go pay her a visit...click here
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I also like the = sign... go figure.

For the last two days I have been "sleepy". And I still feel off... strange.... very strange.

I think I've been waiting for it to be caused by the AVM... and for something to let go... to leave something behind... to stay... but so far nada.

It is strange knowing what is gonna be your end... and wondering how it is gonna show it's ugly face.

It is not something that I am scared of. It just is.

Now I have to decide if I am going to publish this... I think I'm going to... at the risk of my "friends".
You see, I know this makes me sound like I'm depressed... I am not.

but unless they bother to read all the way down... and mull it around in their mines... it is gonna look like I am depressed... I AM NOT!!!!

I am just stating something I think is neat...

okay enough is enough... now I will youtube ya... why? I don't know...



Bob Dylan - Subterranean Homesick Blues


Bob Dylan - Like A Rolling Stone
The first one is for those who r about to lift off....
The second just is...

maby I'll put up some RHPS later... we'll see...

C-ya!

Got one... good news.

Not me... but worth the read.

What A Great Week

What a great week.

Last week wore many of us out both physically and emotionally, plus the little excitement this morning when Pastor said his heart hurt which had the medical staff rushing around and just about put me over the edge. I feared Pastor had thrown a clot or had a major bleed. After the dust settled I’m not sure Karla was as excited as she was last night about Pastor being able to talk, but that’s just an observation on my part.

This morning we brought church to Pastor Mike. Scripture reading from Psalm 95, followed by a few comments and prayer. I thought about singing, but Pastor’s had enough trauma for one week.

At 1 A.M. this morning I woke and began to reflect on the week and was reminded of Psalm 139: 13-14 “For you formed my inward parts: you knitted me together in my mother’s womb. I praise you, for I am fearfully and wonderfully made. Wonderful are your works: my soul knows it very well.”

For 44 years, Pastor Mike’s brain has managed to navigate around his AVM, which turned out to be the size of a peach. Pastor Mike excelled at sports in High School and College in addition to his sharp mind. His brain’s ability to literally rewire the neurological pathways all took place without his knowledge or help.

We are truly “fearfully and wonderfully made.”

Tomorrow will be a very busy day for Pastor, please continue to pray for his speech, movement in his right arm, shoulder and leg as the therapists work on each of these areas. If everything goes well he could even get some broth. Pray for Karla as she has opportunity to talk with other families and share what God is doing in their lives.

On behalf of Pastor, Karla, and their family, thank you for your prayers and support. With each day Pastor makes progress and his body continues to heal. We serve an awesome God that hears our prayers.

God Bless

Dean

from...
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I have gotten rid of my headache. HOOORRRRAAAYYYY!

Not much going on in my neck of the woods.
It's a good day.

The temp is 24 degrees. That's dang cold!!!
have some youtube... just a little...


Ziggy Marley - Tomorrow People


Lauryn Hill feat. Ziggy Marley - Redemption Song


Bob Marley & The Wailers 'Could You Be Loved'

I bet you did not know that I love Reggy. Well I do....

Okay buy something...



That's it... I'll talk at you later... Bye-bye!

I feel yukie today...

So i am not talking much today.
Oh well...
i can still youtube yall...

Ziggy Marley...

more of the same...

peace...
PS. There were no avms news...


pps. getting some Bob Marley too download Is a near impossible task.