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Showing posts with label iron. Show all posts
Showing posts with label iron. Show all posts

Friday, March 06, 2009

AVM News! + Me!

not me... worth a read.

AVM

i have a brain arteriovenous malformation [AVM]
its a collection of blood vessels that are abnormal in my brain.
the [AVM] is composed of a tangle of arteries and veins that form a clump. arteries are those large, thick walled blood vessels that carry blood from the heart to the brain under high pressure; while veins are the softer blood vessels that carry blood back to the heart [veins can usually be seen on the back of your hand]. so, the tangle of blood vessels that make an, AVM may be large, with the tangle web of blood vessels being serveral inches across, or small, perhaps the size of an olive. AVMs are supplied by arteries that branch off of normal brain arteries. it can be visualized as a branch on a tree that goes to a bad portion of the tree. typically there are one to four arteries that supply an AVM, occasionally more. these arteries can be blocked off or removed at surgery safely [so they say] because they supply only the AVM, not the normal brain.


they [my neurologist's] think i was born with the AVM, kind of like a birthmark. there is no known cause for why people have AVMs, and its probably a random event as the brain develops.


brain AVMs dont grow like a tumor. generally they remain about the same size after they are diagnosed. however the blood vessels that compose an AVM can change over time. some arteries and veins may get larger or portions of the blood vessels may close up. some vessels may dilate. these dilations on an artery are called aneurysms; on the veins the dilations are called varices [like varicose veins that can occasionally be found on your leg]. rarely AVMs may get notably bigger or smaller.


there are basically three things that can happen to an AVM to cause problems: bleeding, seizures, or steal blood from the normal brain. right now all i can tell you is, i have seizures.
from... really go see her.
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Me,
I had a weird night... and an even stranger morning... afternoon.
I could not get to sleep until 3:00... I tried to sleep... but I could not get there. I woke at 6:00 drank a pot of coffee... and went back to sleep!

It is now 1:28 and I've just got a shower.... and got dressed. I feel like I could go back to bed...
The sun is out! It is 60 degrees out side. It is almost summer time out there... almost.

okay nuff about me...


Iron Maiden - Eddie Murdered On Stage Live Dortmund 1983 Rare Footage

That's cool!
so what will we give you to buy...

or...

alright... that's enough... for now... see ya!

Saturday, February 14, 2009

Not Me... but a cool AVM blog... NTL

First Morning Post-Surgery

Good morning, dear people. From my perspective, things look much better at 8 in the morning than at 8 at night after a long day of waiting through a surgery! According to the nurses, Mike had a peaceful night. He did not have any seizures, so we thank God for that. He was kept sedated all night, although they woke him up occasionally for neurological checks, which were all good.

As expected, he has no movement on his right side. They are going to hopefully extubate by noon and then we will know whether or not he can talk. We are still hopeful that he will be able to talk.

I was able to be in the room when they did the neurological check at 8:00. He opened his eyes and looked at me briefly, and held onto my hand for several minutes. He squeezed it three times, which for 23 years has been our personal way to say “I love you.” He also responded to pain when they squeezed the toes on his right foot and fingers on his right hand.

The plan for today is to get him awakened and see what happens. Dr. Meyer has said that Mike will not have much pain, just a really bad headache. The only reason he needs to stay in ICU another night is to make sure the blood pressure stays lower to protect against bleeding.

The neurosurgeon will be in again tomorrow morning and decide whether or not Mike can move from ICU to a regular neuro floor. He also indicated that hopefully he will be ready to have the physical therapist come and start to put together a plan for rehab.

Mike and I were engaged 23 years ago today. We keep telling each other that this is one of those “for worse” times. As far as our marriage goes, this is not a “for worse” time, as our marriage has gotten stronger. It has been, and continues to be, very stressful, but we are trusting in God to sustain our entire family through this trial.

We just found out that they have begun to wean him off of the ventilator. We will continue to post updates throughout the day.

from...

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So I've been pretty well... I still have my problems... like should I go to work... do lots... $0 payment. But the chance of making $$$ is there... it is not here.

My wife has turned mean... but that happens...

I am not making any money from home. Not really a surprise. I really do wish that I could figure out how to make a living on line.

xxx xxx xxx I would have gotten a divorce. SAD SAD!
I blame the AVM for poping when it did.

Here you go have some youtube...



Iron Maiden - Run To The Hills [1982 Music Video]


Simple Minds - Glittering Prize (1982)

Ahhh that's enough for now... if you want to see something here... just drop me a line.

Tuesday, October 28, 2008

da da da dum.....my avm

My first AVM...I have a pic of no. 2. but I can't figure out how to get it loaded.

There is nothing going on today.... not even on my other blog.
here if you are interested.
So what to do.... well how about me?
(or at least my story)#2
I was on a working vacation.
I went to lunch with a friend... I think....
I woke up in a hospital... my second.... weird.
I could not talk... I was paralyzed on my right side.

My wife had showed up.... with a couple of her sons... they were not well behaved... they are 30 and 27 in age.

My friend showed up too... he is webmaster here.

He spent quite a lot of time with me.

My friend that I went to lunch with stayed with me too... she was an angel!
I quit smoking... it just was not a concern.

Then came the transport came... Another friend drove his camper down.
(I live in GR Mi.)

I really can't tell you much about the trip, I was out of it.

Next came rehab... it feels like it was yesterday.... It was closer to 2 years ago.
I can remember wheeling around the hospital at night and early in the morning... I don't know what I was looking for... but I don't think I found it....

Rehab is a blur... I just don't remember it much... truth is I don't remember much these days.

I got to go home I think it was 2 months... Then came more rehab.
The only thing I was missing was a bed where I took rehab... This lasted 3 months.
Then I was told go home... you are cured... well as much as your going to get. I could not talk... I was terribly frustrated. I knew what I wanted to say... but something in between the thought and my mouth there was a block of some kind.

Fast forward to now...
I still can't talk as well as I would like... but it is getting better. (slowly)
I can manage stairs! I am a little slow... but I manage them none the less.
I got rehired (part time) by my old job. I am not in the same position... but they have me working a little.

I stared smoking again..... dumb I know.
but I did quit drinking... that is one check it the good coulomb.
I take an antidepressant... but that is it.
Not bad if you ask me.... not to bad at all.

I still can not spell... but I never could.
And that's about it...
so let me give youtube a plug...


ha ha ha!


Iron Maiden - 2 Minutes To Midnight (Music Video 1984)

I can cut-and-paste as well as the next guy.

here buy something....


Wednesday, October 15, 2008

I got one... a sad one.

Here you go...
from...
British heavy metal vocalist Blaze Bayley (IRON MAIDEN, WOLFSBANE), whose wife, Debbie Hartland, died late last month after suffering a brain hemorrhage while in the hospital, has released the following statement:

"Thank you all for your support through this most difficult time.

"Some weeks before Debbie had her first brain hemorrhage, we were talking about what we would do if anything ever happened to the other partner. I don't really know why this came up, but perhaps it was something to do with the loss of her nephew, who a few weeks before was involved in a fatal road accident.

"'What am I supposed to do if anything happens to you?' She said. I had forgotten to take some medication for my blood pressure, prescribed by the doctor, and she was annoyed with me. In an argumentative way I said, 'And what am I supposed to do if anything happens to you?' I can see her in my mind so clearly now, as she stopped what she was doing and looked at me and said, 'What would you do if anything happened to me?'

"'Nothing,' I said, 'I would give up. There is no reason to live if you are not with me.' She looked at me, and smiled, the way she did when she knew that when I said I loved her I meant it.

"'No,' she said, 'I'd want you to carry on with your music.'

"A couple of weeks after that conversation Debbie was in a coma.

"The doctor told us that this brain haemorrhage could have been caused by an AVM, something that we as a family had never heard of before. It is an abnormality in the brain that you are born with and may never hurt you or it can strike you down.

"That brief casual conversation we had came to the front of my mind when I was faced with the decision of going away to do the concerts that Debbie had booked for me and the band. I could only think that she had really meant it when she said, 'I'd want you to carry on.' It was very hard to face being away from her while she was so ill. The first time was the day after it happened. Debbie was rushed into hospital on Sunday the 6th of July. The night before we were all at Twickenham with IRON MAIDEN. The gig was great. The backstage was free food and booze. I met loads of people I hadn't seen for years and Debbie made a lot of friends and contacts. We were telling everyone that the album would be out on Monday. When Monday came the world had changed. Debbie was in a coma in the neuro-critical care unit in hospital in Birmingham.

"Debbie had organized a signing for the band at HMV in Birmingham at 5pm. At this point only close family and the band knew what the situation was. The hospital was 15 minutes away from the signing. Debbie was critical but stable. I decided to try and make it to the signing and get back as soon as possible.

"That was one of the toughest things I have ever done in my life.

"The next thing she had planned was a promotional trip to Italy for me. Right up until the last minute, I was going, but then the evening before I had no choice but to pull out because Debbie had to have a surgery on her brain and there was a risk that she would not make it. I told Fulvio, my friend of many years and manager of the CLAIRVOYANTS band, who had organized the trip, what the situation was. As we waited for Debbie to come out of the surgery, then to come round from the anaesthetic, me and everyone else in the family, were camped out at the hospital and we were on edge. Occasionally I would go outside to check text messages and update the rest of my family on Debbie's situation. On the Sunday afternoon I had a text message from Fulvio in Italy. It said... festival canceled because of a terrible thunder and lightning storm. So, I thought, that trip that Debbie and me were looking forward to so much was never meant to happen.

"Debbie had two more operations on her brain, and one on her stomach for a special feeding tube called 'a peg,' but none of these coincided with any of the gigs she had booked for us. So I was able to leave her side for a few days at a time to do the shows she had planned for us. When these shows were done, I was able to spend most of my time with her at the hospital between visits from family and friends. The rest of the guys in the band continued to run things and carry on with Debbie's plan for the tour in 2009.

"About a week after Debbie's last brain surgery her condition seemed to improve in a small but significant way. Her periods of deep unresponsive coma seemed a little less and in the times when she seemed in a more wakeful state she seemed more awake than she had since the brain haemorrhage first happened. There were moments, seconds, of awareness, but I knew; I could see, that she was there trying to fight her way back to the world and back to me. The physiotherapist and occupational therapists showed me all the excises Debbie had to do to give us the best chance of keeping the movement and mobility in her limbs and her joints so as she gradually improved she would have more movement and less work to do with the physio. I did the exercises with her every day that I was at the hospital. I imagined her coming home. I imagined changing the house to make it easier for her to get about, and I imagined touring next year and hoping she would be well enough to come with us on a tour bus, and we could do her exercises and therapy around the gigs. I felt that if anyone could come back from this it was Debbie. I felt, I believed, that she was on her way back to me. The days seemed more hopeful.

"For me, every day she was alive was another day I was blessed. Every day she made even the tiniest improvement I was celebrating. I cried tears of joy on many occasions when we were doing our exercises. She could not talk or open her eyes and many of the movements she made were instinctive or involuntary, but there were also times when her movements were a direct response to a request. 'Wiggle your toes, Deb,' I asked and she could move the toes on her right foot. 'Squeeze my hand,' and she could squeeze my hand with her right hand. 'Open your hand,' and she could open it. 'Close your hand' and she could close it. 'Shake your head,' and the tiny movement of her head made me burst into tears. Her left side was difficult for her because that side seemed to have been the worst affected. The physio called it her weak side. As we continued every day to work on our movement, she even managed to make a very small movement with her left foot. Hardly anything but it was there, and it made me burst into tears of pride and happiness when she did it. At this time I was with her every night, beside her bed in a chair, watching her to make sure that she did not injure herself as she squirmed around in bed. Her right foot seemed to search for things she could feel with her toes. With her right hand she sometimes tried to pull out the tracheotomy breathing tube. Other times she would have a terrible choking cough and would have treatment from the nurse. These nights were painful and beautiful for me. Even though it was in circumstances that were terrible, I was spending each night with my wife. Around noon Deb's mum and dad or sister would come over to carry on watching over her and I would go home. I checked my email and every day we had messages of support from fans from every part of the world. I would talk over what was happening with band business with Nick and Dave and then try to get a little rest ready for the evening with Debbie.

"Just as things really seemed to be going our way, Debbie suffered a second huge brain haemorrhage. She had brain scans and was taken into intensive care. After this, we think, she suffered another smaller bleed in her brain. However much reality I was faced with I refused to accept that there was no hope for recovery. But when reality is a top consultant doctor, spelling out bit by bit the true magnitude of Debbie's condition, and when you are in his office with the people, who you have shared the hope, tears, and desperation of these days with you, and when you look at each other without needing words between you. Then it is no longer a case of fighting to keep hope alive, to stop the last shreds of hope being taken from you. But as the soft confident voice says the words that describe the condition of your loved one's brain, then hope is given up. Hope melts away. It is something so precious but without worldly value and it is replaced silently and cruelly by a desperate fatalistic feeling, that feeling enters the soul that, now, has no hope.

"Debbie fought on for two more nights. On the morning of the 27th of September at 10.05am Debbie passed away with her mother and me holding her and comforting her as she started her journey to next life, beyond this world of pain and suffering. In that moment my heart was broken.

"I was living only for her, because she had said those weeks before that she wanted me to carry on. Then I decided to try and do the Metieval Festival in Beverley near Hull. I had become ill since Debbie's passing and the doctor gave me what he could to try and help me keep my voice, and keep at bay the flu or chest infection or virus that I was coming down with. The gig was very difficult and I wondered if my voice would last to the end. The last song of the set was Debbie's song, 'While You Were Gone'. Somehow the sound on stage had cleared up and my voice had got some small amount of strength left and I managed to sing it for her. It was the first time we ever did the song live and for her not to be there to hear it, was again, very difficult.

"On Tuesday was the funeral; the biggest that the tiny parish church had seen in recent years. The most flowers the funeral people had ever had for any one they could remember. Everyone she ever met seemed to still be connected to her. If she had been their friend, even briefly, then people still seemed to feel that connection years later.

"On Friday there was a small private service. Debbie's ashes were placed in a private place where those of us who loved her can visit.

"I thank you for your support and friendship and loyalty through this time. It is my belief that in the worst of times, our true nature is revealed. My band have been unwavering in their support of Debbie and of me. My fans have made me humble with their generosity of spirit and their loyalty and understanding. I have lost the love of my life. I have lost my reason to live. But, because she asked me to continue to live, and to stay true to the path she worked so hard to make clear for me, I will continue. For her and for you, all of you that believed she was right to have faith in me, I will continue. For her memory and to honor her, I will continue."
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go see the original post... leave a message.
click here
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Sometimes it seems like death would be esaer but then I read something like this.
To sad....
No youtube... I just don't feel like it.




Tuesday, September 30, 2008

Hello eveybody!

I got wife... so don't expect much from me today.
but let me youtube ya'


Iron Maiden - Aces High [1984 Music Video]



Runner (1984) Music Video


Iron Maiden - 2 Minutes To Midnight (Music Video 1984)

good bye!

Tuesday, July 29, 2008

No Avms To Report... just a little of my mind.

This is my brain... this is my brain on drugs.

(Actually I am only on Antidepressants.)
But we'll say Drugs... thay are... kida.

I have to say I feel better on them. You know I quit smoking... for about 6 months. I started again. Oh boy did that make heads turn. But you know what? It is my body... and I am happier... a lot happier!

You know what I want? I want to go out! I don't know where... just out!

I also want to know what made my friend in Florida go away?
I miss her.... a lot.

well lets see what I can dig out of youtube... shall we?


That's a Movie... Night of the Living Dead.

i LIKE THE MOVIE...


Iron Maiden... Holy Smoke!

It scores 4.5...


Midnight Oil... King of the Mountain...

amazon..